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Gepubliceerd in:

20-08-2024

Association between stigma and quality of life among chronic refractory wounds patients and informal caregivers: an actor-partner interdependence model analysis

Auteurs: Ming Cheng, Chenya Zhu, Jiamin Meng, Chenxi Pu, Guoying Chen, Huan Liu

Gepubliceerd in: Quality of Life Research | Uitgave 11/2024

Abstract

Purpose

The co-occurrence of health impairments in patients and their informal caregivers may be particularly common in intimate care settings in China. Patients with Chronic Refractory Wounds (CRWs) and their informal caregivers constitute a dyad and exhibit dyadic effects during the caring process. Unfortunately, no study has yet explored the dyadic effects of stigma on the QoL of patients with CRWs and their caregivers.

Methods

We used a convenience sampling method and recruited CRWs patient-caregiver dyads (N = 207) in China between April 2022 and October 2023.

Results

We found that: (i) dyadic members experience varying degrees of stigma; (ii) the actor–partner effect of CRWs patients’ stigma on their own and their informal caregivers’ QoL was significant (Path A₁: β = − 1.27, Path A₂: β = − 0.37, Path P₁: β = − 0.08, Path P₂: β = − 0.18); (iii) informal caregivers’ stigma adversely affects both their own and their patients’ psychological QoL((Path A₄: β = − 0.65, Path P₄: β = − 0.52)). Informal caregivers’ stigma can negatively impact patients’ physical QoL (Path P₃: β = − 0.17), whereas it does not significantly affect their own physical QoL.

Conclusion

There is a notable actor–partner effect of the CRWs patients’ stigma on their own and their informal caregivers’ QoL. CRWs patients’ stigma should become a priority for the government to improve CRWs patients’ and informal caregivers’ QoL. Besides, health professionals should be addressing several assessments and interventions to decrease informal caregivers’ affiliate stigma symptoms and improve CRWs patients’ and informal caregivers’ QoL.

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Titel: Association between stigma and quality of life among chronic refractory wounds patients and informal caregivers: an actor-partner interdependence model analysis
Auteurs: Ming Cheng
Chenya Zhu
Jiamin Meng
Chenxi Pu
Guoying Chen
Huan Liu
Publicatiedatum: 20-08-2024
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 11/2024
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-024-03759-0

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