Swipe om te navigeren naar een ander artikel
The online version of this article (https://doi.org/10.1007/s10803-019-04115-9) contains supplementary material, which is available to authorized users.
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
This study aimed to explore the appropriateness of an ICT intervention, the Therapeutic Outcomes by You application (TOBY app), from the perspectives of the parents. Parental experiences of twenty-four parents of a child with ASD who had participated in a three-month trial using the TOBY app were collected using semi-structured interviews. Thematic analysis was conducted and themes were mapped against an appropriateness framework. Collectively, parents felt the TOBY app was relevant and important to them and their children’s needs, while expressing partial support of the TOBY app as: a positive experience for them and their children, beneficial for them and their children, a socially and ecological valid intervention, and an intervention that supported change and continuation in the skills learnt.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Supplementary material 1 (DOCX 28 kb)10803_2019_4115_MOESM1_ESM.docx
Allan, N., Wilkes-Gillan, S., Bundy, A., Cordier, R., & Volkert, A. (2018). Parents’ perceptions of the long-term appropriateness of a psychosocial intervention for children with attention deficit hyperactivity disorder. Australian Occupational Therapy Journal, 65(4), 259–267. CrossRef
Allen, M. L., Hartley, C., & Cain, K. (2016). iPads and the use of “apps” by children with autism spectrum disorder: Do they promote learning? Frontiers in Psychology, 7 1305.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders: DSM-5. Washinton, DC: American Psychiatric Pub. CrossRef
Anney, V. N. (2014). Ensuring the quality of the findings of qualitative research: Looking at trustworthiness criteria. Journal of Emerging Trends in Educational Research and Policy Studies, 5(2), 272–281.
Antezana, L., Scarpa, A., Valdespino, A., Albright, J., & Richey, J. A. (2017). Rural trends in diagnosis and services for autism spectrum disorder. Frontiers in Psychology, 8, 590. CrossRef
Australian Bureau of Statistics. (2011). Australian standard geographical classification system (ASGC). Canberra: Commonwealth of Australia.
Baranowski, T., Buday, R., Thompson, D. I., & Baranowski, J. (2008). Playing for real: Video games and stories for health-related behavior change. American Journal of Preventive Medicine, 34(1), 74–82. CrossRef
Bowen, D. J., Kreuter, M., Spring, B., Cofta-Woerpel, L., Linnan, L., Weiner, D., et al. (2009). How we design feasibility studies. American Journal of Preventive Medicine, 36(5), 452–457. CrossRef
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. CrossRef
Campbell, M., Fitzpatrick, R., Haines, A., Kinmonth, A. L., Sandercock, P., Spiegelhalter, D., et al. (2000). Framework for design and evaluation of complex interventions to improve health. BMJ, 321(7262), 694–696. CrossRef
Campbell, N. C., Murray, E., Darbyshire, J., Emery, J., Farmer, A., Griffiths, F., et al. (2007). Designing and evaluating complex interventions to improve health care. BMJ, 334(7591), 455. CrossRef
Cordier, R., McAuliffe, T., Wilson, N. J., Totino, R., Dender, A., Smith, C., et al. (2016). The appropriateness and feasibility of an online e-Portfolio for assessment of undergraduate allied health students. Australian Occupational Therapy Journal, 63(3), 154–163. CrossRef
Craig, P., Dieppe, P., Macintyre, S., Michie, S., Nazareth, I., & Petticrew, M. (2008). Developing and evaluating complex interventions: The new Medical Research Council guidance. BMJ, 337, a1655. CrossRef
Creswell, J. W. (1998). Qualitative inquiry and research design: Choosing among five traditions. Thousand Oaks: Sage.
Dawson, G., Rogers, S., Munson, J., Smith, M., Winter, J., Greenson, J., et al. (2010). Randomized, controlled trial of an intervention for toddlers with autism: the Early Start Denver Model. Pediatrics, 125(1), e17–e23. CrossRef
Evans, D. (2003). Hierarchy of evidence: A framework for ranking evidence evaluating healthcare interventions. Journal of Clinical Nursing, 12(1), 77–84. CrossRef
Fageera, W., Traicu, A., Sengupta, S. M., Fortier, M. E., Choudhry, Z., Labbe, A., et al. (2018). Placebo response and its determinants in children with ADHD across multiple observers and settings: A randomized clinical trial. International Journal of Methods in Psychiatric Research, 27(1), e1572. CrossRef
Foster, L., Dunn, W., & Lawson, L. M. (2013). Coaching mothers of children with autism: A qualitative study for occupational therapy practice. Physical and Occupational Therapy in Pediatrics, 33(2), 253–263. CrossRef
Gray, D. E. (1994). Coping with autism: Stresses and strategies. Sociology of Health and Illness, 16(3), 275–300. CrossRef
Hammell, K. W. (2001). Using qualitative research to inform the client-centred evidence-based practice of occupational therapy. The British Journal of Occupational Therapy, 64(5), 228–234. CrossRef
Happé, F., & Ronald, A. (2008). The ‘fractionable autism triad’: A review of evidence from behavioural, genetic, cognitive and neural research. Neuropsychology Review, 18(4), 287–304. CrossRef
Heitzman-Powell, L. S., Buzhardt, J., Rusinko, L. C., & Miller, T. M. (2013). Formative evaluation of an ABA outreach training program for parents of children with autism in remote areas. Focus on Autism and Other Developmental Disabilities, 29(1), 23–38. CrossRef
Hoogsteen, L., & Woodgate, R. L. (2013). Embracing autism in Canadian rural communities. Australian Journal of Rural Health, 21(3), 178–182. CrossRef
Horlin, C., Falkmer, M., Parsons, R., Albrecht, M. A., & Falkmer, T. (2014). The cost of autism spectrum disorders. PLoS ONE, 9(9), e106552. CrossRef
Hudry, K., McConachie, H., Le Couteur, A., Howlin, P., Barrett, B., Slonims, V., et al. (2018). Predictors of reliable symptom change: Secondary analysis of the Preschool Autism Communication Trial. Autism and Developmental Language Impairments, 3, 2396941518764760. CrossRef
Hutton, A. M., & Caron, S. L. (2005). Experiences of families with children with autism in rural New England. Focus on Autism and Other Developmental Disabilities, 20(3), 180–189. CrossRef
Kourkoulou, A., Leekam, S. R., & Findlay, J. M. (2012). Implicit learning of local context in autism spectrum disorder. Journal of Autism and Developmental Disorders, 42(2), 244–256. CrossRef
Krefting, L. (1991). Rigor in qualitative research: The assessment of trustworthiness. American Journal of Occupational Therapy, 45(3), 214–222. CrossRef
Liamputtong, P. (2013). Qualitative research methods (4th ed.). South Melbourne: Oxford University Press.
Mackintosh, V. H., Goin-Kochel, R. P., & Myers, B. J. (2012). What do you like/dislike about the treatments you’re currently using? A qualitative study of parents of children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 27(1), 51–60. CrossRef
Masi, A., Lampit, A., Glozier, N., Hickie, I. B., & Guastella, A. J. (2015). Predictors of placebo response in pharmacological and dietary supplement treatment trials in pediatric autism spectrum disorder: A meta-analysis. Translational psychiatry, 5(9), e640. CrossRef
McAuliffe, T., Cordier, R., Vaz, S., Thomas, Y., & Falkmer, T. (2017). Quality of life, coping styles, stress levels, and time use in mothers of children with autism spectrum disorders: Comparing single versus coupled households. Journal of Autism and Developmental Disorders, 47(10), 3189–3203. CrossRef
McConachie, H., & Diggle, T. (2007). Parent implemented early intervention for young children with autism spectrum disorder: A systematic review. Journal of Evaluation in Clinical Practice, 13(1), 120–129. CrossRef
Nastasi, B. K., Varjas, K., Schensul, S. L., Silva, K. T., Schensul, J. J., & Ratnayake, P. (2000). The participatory intervention model: A framework for conceptualizing and promoting intervention acceptability. School Psychology Quarterly, 15(2), 207. CrossRef
Nealy, C. E., O’Hare, L., Powers, J. D., & Swick, D. C. (2012). The impact of autism spectrum disorders on the family: A qualitative study of mothers’ perspectives. Journal of Family Social Work, 15(3), 187–201. CrossRef
Parsons, D., Cordier, R., Lee, H., Falkmer, T., & Vaz, S. (2018). A randomised controlled trial of an information communication technology delivered intervention for children with autism spectrum disorder living in regional Australia. Journal of Autism and Developmental Disorders, 49(2), 569–581. CrossRef
Pink, B. (2011). Socio-economic indexes for areas (SEIFA). Canberra: Australian Bureau of Statistics.
Ploog, B. O., Scharf, A., Nelson, D., & Brooks, P. J. (2013). Use of computer-assisted technologies (CAT) to enhance social, communicative, and language development in children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(2), 301–322. CrossRef
Prior, M., & Roberts, J. (2012). Early intervention for children with austism spectrum disorders: ‘Guidelines for good practice’ 2012. Canberra: FaHCSIA.
Proctor, E., Silmere, H., Raghavan, R., Hovmand, P., Aarons, G., Bunger, A., et al. (2011). Outcomes for implementation research: Conceptual distinctions, measurement challenges, and research agenda. Administration and Policy in Mental Health and Mental Health Services Research, 38(2), 65–76. CrossRef
Ramdoss, S., Lang, R., Mulloy, A., Franco, J., O’Reilly, M., Didden, R., et al. (2011). Use of computer-based interventions to teach communication skills to children with autism spectrum disorders: A systematic review. Journal of Behavioral Education, 20(1), 55–76. CrossRef
Ramdoss, S., Machalicek, W., Rispoli, M., Mulloy, A., Lang, R., & O’Reilly, M. (2012). Computer-based interventions to improve social and emotional skills in individuals with autism spectrum disorders: A systematic review. Developmental Neurorehabilitation, 15(2), 119–135. CrossRef
Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451. CrossRef
Rogerson, J., Falkmer, M., Cuomo, B., Falkmer, T., Whitehouse, A. J. O., Granich, J., et al. (2018). Parental experiences using the therapy outcomes by you (TOBY) application to deliver early intervention to their child with autism. Developmental Neurorehabilitation, 22(4), 219–227. CrossRef
Shenton, A. K. (2004). Strategies for ensuring trustworthiness in qualitative research projects. Education for Information, 22(2), 63–75. CrossRef
Silver, M., & Oakes, P. (2001). Evaluation of a new computer intervention to teach people with autism or Asperger syndrome to recognize and predict emotions in others. Autism, 5(3), 299–316. CrossRef
Smith, T., Scahill, L., Dawson, G., Guthrie, D., Lord, C., Odom, S., et al. (2007). Designing research studies on psychosocial interventions in autism. Journal of Autism and Developmental Disorders, 37(2), 354–366. CrossRef
Solish, A., & Perry, A. (2008). Parents’ involvement in their children’s behavioral intervention programs: Parent and therapist perspectives. Research in Autism Spectrum Disorders, 2(4), 728–738. CrossRef
Tseng, R.-Y., & Do, E. Y.-L. (2010). Facial expression wonderland (FEW): a novel design prototype of information and computer technology (ICT) for children with autism spectrum disorder (ASD). Paper presented at the Proceedings of the 1st ACM International Health Informatics Symposium.
Venkatesh, S., Phung, D., Duong, T., Greenhill, S., & Adams, B. (2013). TOBY: early intervention in autism through technology. Paper presented at the Proceedings of the SIGCHI Conference on Human Factors in Computing Systems.
Vivanti, G., Prior, M., Williams, K., & Dissanayake, C. (2014). Predictors of outcomes in autism early intervention: Why don’t we know more? Frontiers in pediatrics, 2, 58. CrossRef
Wacker, D. P., Lee, J. F., Dalmau, Y. C., Kopelman, T. G., Lindgren, S. D., Kuhle, J., et al. (2013). Conducting functional communication training via telehealth to reduce the problem behavior of young children with autism. Journal of Developmental and Physical Disabilities, 25(1), 35–48. https://doi.org/10.1007/s10882-012-9314-0. CrossRef
Wainer, A. L., & Ingersoll, B. R. (2011). The use of innovative computer technology for teaching social communication to individuals with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 96–107. CrossRef
Whalen, C., Liden, L., Ingersoll, B., Dallaire, E., & Liden, S. (2006). Behavioral improvements associated with computer-assisted instruction for children with developmental disabilities. The Journal of Speech and Language Pathology-Applied Behavior Analysis, 1(1), 11–26. CrossRef
Whitehouse, A. J., Granich, J., Alvares, G., Busacca, M., Cooper, M. N., Dass, A., et al. (2017). A randomised controlled trial of an iPad-based application to complement early behavioural intervention in autism spectrum disorder. Journal of Child Psychology and Psychiatry, 58(9), 967–1064. CrossRef
Whyte, E. M., Smyth, J. M., & Scherf, K. S. (2015). Designing serious game interventions for individuals with autism. Journal of Autism and Developmental Disorders, 45(12), 3820–3831. CrossRef
Wilkes-Gillan, S., Bundy, A., Cordier, R., Lincoln, M., & Hancock, N. (2015). Parents’ perspectives on the appropriateness of a parent-delivered intervention for improving the social play skills of children with ADHD. British Journal of Occupational Therapy, 78(10), 644–652. CrossRef
- Appropriateness of the TOBY Application, an iPad Intervention for Children with Autism Spectrum Disorder: A Thematic Approach
Nathan J. Wilson
- Springer US
Journal of Autism and Developmental Disorders
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432