Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 5/2012

01-05-2012 | Original Paper

Applied Behavior Analysis Programs for Autism: Sibling Psychosocial Adjustment During and Following Intervention Use

Auteur: Katie R. Cebula

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2012

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Psychosocial adjustment in siblings of children with autism whose families were using a home-based, applied behavior analysis (ABA) program was compared to that of siblings in families who were not using any intensive autism intervention. Data gathered from parents, siblings and teachers indicated that siblings in ABA families experienced neither significant drawbacks nor benefits in terms of their behavioral adjustment, sibling relationship quality and self-concept compared to control group siblings, either during or following intervention use. Parents and siblings perceived improvements in sibling interaction since the outset of ABA, with parents somewhat more positive in their views than were siblings. Social support was associated with better sibling outcomes in all groups. Implications for supporting families using ABA are considered.
Literatuur
go back to reference Abidin, R. R. (1995). Parenting Stress Index professional manual (3rd ed.). Lutz, FL: Psychological Assessment Resources. Abidin, R. R. (1995). Parenting Stress Index professional manual (3rd ed.). Lutz, FL: Psychological Assessment Resources.
go back to reference Bågenholm, A., & Gillberg, C. (1991). Psychosocial effects on siblings of children with autism and mental retardation: A population-based study. Journal of Mental Deficiency Research, 35, 291–307.PubMed Bågenholm, A., & Gillberg, C. (1991). Psychosocial effects on siblings of children with autism and mental retardation: A population-based study. Journal of Mental Deficiency Research, 35, 291–307.PubMed
go back to reference Birnbrauer, J. S., & Leach, D. J. (1993). The Murdoch early intervention program after 2 years. Behaviour Change, 10, 63–74. Birnbrauer, J. S., & Leach, D. J. (1993). The Murdoch early intervention program after 2 years. Behaviour Change, 10, 63–74.
go back to reference Cuskelly, M. (1999). Adjustment of siblings of children with a disability: Methodological issues. International Journal for the Advancement of Counselling, 21, 111–124.CrossRef Cuskelly, M. (1999). Adjustment of siblings of children with a disability: Methodological issues. International Journal for the Advancement of Counselling, 21, 111–124.CrossRef
go back to reference Cuskelly, M., & Gunn, P. (2003). Sibling relationships of children with Down syndrome: Perspectives of mothers, fathers and siblings. American Journal on Mental Retardation, 108, 234–244.PubMedCrossRef Cuskelly, M., & Gunn, P. (2003). Sibling relationships of children with Down syndrome: Perspectives of mothers, fathers and siblings. American Journal on Mental Retardation, 108, 234–244.PubMedCrossRef
go back to reference Dunst, C. J., Jenkins, V., & Trivette, C. M. (1984). The Family Support Scale: Reliability and validity. Journal of Individual, Family and Community Wellness, 1, 45–52. Dunst, C. J., Jenkins, V., & Trivette, C. M. (1984). The Family Support Scale: Reliability and validity. Journal of Individual, Family and Community Wellness, 1, 45–52.
go back to reference Dunst, C. J., Trivette, C. M., & Hamby, D. W. (1994). Measuring social support in families with young children with disabilities. In C. J. Dunst, C. M. Trivette, & A. G. Deal (Eds.), Supporting and strengthening families, Vol. 1: Methods, strategies and practices. Cambridge: Brookline Books Inc. Dunst, C. J., Trivette, C. M., & Hamby, D. W. (1994). Measuring social support in families with young children with disabilities. In C. J. Dunst, C. M. Trivette, & A. G. Deal (Eds.), Supporting and strengthening families, Vol. 1: Methods, strategies and practices. Cambridge: Brookline Books Inc.
go back to reference Eldevik, S., Hastings, R. P., Hughes, J. C., Jahr, E., Eikeseth, S., & Cross, S. (2010). Using participant data to extend the evidence base for intensive behavioural intervention for children with autism. American Journal on Intellectual and Developmental Disabilities, 115, 381–405.PubMedCrossRef Eldevik, S., Hastings, R. P., Hughes, J. C., Jahr, E., Eikeseth, S., & Cross, S. (2010). Using participant data to extend the evidence base for intensive behavioural intervention for children with autism. American Journal on Intellectual and Developmental Disabilities, 115, 381–405.PubMedCrossRef
go back to reference Fisman, S., Wolf, L., Ellison, D., Gillis, B., & Freeman, T. (2000). A longitudinal study of siblings of children with chronic disabilities. Canadian Journal of Psychiatry, 45, 369–375. Fisman, S., Wolf, L., Ellison, D., Gillis, B., & Freeman, T. (2000). A longitudinal study of siblings of children with chronic disabilities. Canadian Journal of Psychiatry, 45, 369–375.
go back to reference Fisman, S., Wolf, L., Ellison, D., Gillis, B., Freeman, T., & Szatmari, P. (1996). Risk and protective factors affecting the adjustment of siblings of children with chronic disabilities. Journal of the American Academy of Child and Adolescent Psychiatry, 35, 1532–1541.PubMedCrossRef Fisman, S., Wolf, L., Ellison, D., Gillis, B., Freeman, T., & Szatmari, P. (1996). Risk and protective factors affecting the adjustment of siblings of children with chronic disabilities. Journal of the American Academy of Child and Adolescent Psychiatry, 35, 1532–1541.PubMedCrossRef
go back to reference Gilliam, J. E. (1995). Gilliam Autism Rating Scale. Austin, TX: Pro-Ed. Gilliam, J. E. (1995). Gilliam Autism Rating Scale. Austin, TX: Pro-Ed.
go back to reference Goodman, R. (1997). The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38, 581–586.PubMedCrossRef Goodman, R. (1997). The Strengths and Difficulties Questionnaire: A research note. Journal of Child Psychology and Psychiatry, 38, 581–586.PubMedCrossRef
go back to reference Goodman, R. (2001). Psychometric properties of the Strengths and Difficulties Questionnaire. Journal of the American Academy of Child and Adolescent Psychiatry, 40, 1337–1345.PubMedCrossRef Goodman, R. (2001). Psychometric properties of the Strengths and Difficulties Questionnaire. Journal of the American Academy of Child and Adolescent Psychiatry, 40, 1337–1345.PubMedCrossRef
go back to reference Goodman, R., Meltzer, H., & Bailey, V. (1998). The Strengths and Difficulties Questionnaire: A pilot study on the validity of the self-report version. European Child and Adolescent Psychiatry, 7, 125–130.PubMedCrossRef Goodman, R., Meltzer, H., & Bailey, V. (1998). The Strengths and Difficulties Questionnaire: A pilot study on the validity of the self-report version. European Child and Adolescent Psychiatry, 7, 125–130.PubMedCrossRef
go back to reference Goodman, R., & Scott, S. (1999). Comparing the Strengths and Difficulties Questionnaire and the child behavior checklist: Is small beautiful? Journal of Abnormal Child Psychology, 27, 17–24.PubMedCrossRef Goodman, R., & Scott, S. (1999). Comparing the Strengths and Difficulties Questionnaire and the child behavior checklist: Is small beautiful? Journal of Abnormal Child Psychology, 27, 17–24.PubMedCrossRef
go back to reference Grindle, C. F., Kovshoff, H., Hastings, R. P., & Remington, B. (2009). Parents’ experiences of home-based applied behavior analysis programs for young children with autism. Journal of Autism and Developmental Disorders, 39, 42–56.PubMedCrossRef Grindle, C. F., Kovshoff, H., Hastings, R. P., & Remington, B. (2009). Parents’ experiences of home-based applied behavior analysis programs for young children with autism. Journal of Autism and Developmental Disorders, 39, 42–56.PubMedCrossRef
go back to reference Harter, S. (1985). Manual for the Social Support Scale for Children. Denver, CO: University of Denver. Harter, S. (1985). Manual for the Social Support Scale for Children. Denver, CO: University of Denver.
go back to reference Hastings, R. P. (2003a). Brief report: Behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 33, 99–104.PubMedCrossRef Hastings, R. P. (2003a). Brief report: Behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 33, 99–104.PubMedCrossRef
go back to reference Hastings, R. P. (2003b). Behavioral adjustment of siblings of children with autism engaged in ABA early intervention programs: The moderating role of social support. Journal of Autism and Developmental Disorders, 33, 141–150.PubMedCrossRef Hastings, R. P. (2003b). Behavioral adjustment of siblings of children with autism engaged in ABA early intervention programs: The moderating role of social support. Journal of Autism and Developmental Disorders, 33, 141–150.PubMedCrossRef
go back to reference Hastings, R. P., & Johnston, E. (2001). Stress in UK families conducting intensive home-based behaviorial interventions for their young child with autism. Journal of Autism and Developmental Disorders, 31, 327–336.PubMedCrossRef Hastings, R. P., & Johnston, E. (2001). Stress in UK families conducting intensive home-based behaviorial interventions for their young child with autism. Journal of Autism and Developmental Disorders, 31, 327–336.PubMedCrossRef
go back to reference Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., degli Espinosa, F., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9, 377–391.PubMedCrossRef Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., degli Espinosa, F., & Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9, 377–391.PubMedCrossRef
go back to reference Hastings, R. P., & Symes, M. D. (2002). Early intensive behavioural intervention for children with autism: Parental therapeutic self-efficacy. Research in Developmental Disabilities, 23, 332–341.PubMedCrossRef Hastings, R. P., & Symes, M. D. (2002). Early intensive behavioural intervention for children with autism: Parental therapeutic self-efficacy. Research in Developmental Disabilities, 23, 332–341.PubMedCrossRef
go back to reference Hodapp, R. M., Glidden, L. M., & Kaiser, A. P. (2005). Siblings of persons with disabilities: Toward a research agenda. Mental Retardation, 43, 334–338.PubMed Hodapp, R. M., Glidden, L. M., & Kaiser, A. P. (2005). Siblings of persons with disabilities: Toward a research agenda. Mental Retardation, 43, 334–338.PubMed
go back to reference Johnson, E., & Hastings, R. P. (2002). Facilitating factors and barriers to the implementation of intensive home-based behavioural intervention for young children with autism. Child: Care, Health and Development, 28, 123–129.CrossRef Johnson, E., & Hastings, R. P. (2002). Facilitating factors and barriers to the implementation of intensive home-based behavioural intervention for young children with autism. Child: Care, Health and Development, 28, 123–129.CrossRef
go back to reference Kaminsky, L., & Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. Journal of Child Psychology and Psychiatry, 43, 225–232.PubMedCrossRef Kaminsky, L., & Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. Journal of Child Psychology and Psychiatry, 43, 225–232.PubMedCrossRef
go back to reference Knott, F., Lewis, C., & Williams, T. (2007). Sibling interaction of children with autism: Development over 12 months. Journal of Autism and Developmental Disorders, 37, 1987–1995.PubMedCrossRef Knott, F., Lewis, C., & Williams, T. (2007). Sibling interaction of children with autism: Development over 12 months. Journal of Autism and Developmental Disorders, 37, 1987–1995.PubMedCrossRef
go back to reference Lecavalier, L. (2005). An evaluation of the Gilliam Autism Rating Scale. Journal of Autism and Developmental Disorders, 35, 795–805.PubMedCrossRef Lecavalier, L. (2005). An evaluation of the Gilliam Autism Rating Scale. Journal of Autism and Developmental Disorders, 35, 795–805.PubMedCrossRef
go back to reference Macks, R. J., & Reeve, R. E. (2007). The adjustment of non-disabled siblings of children with autism. Journal of Autism and Developmental Disorders, 37, 1060–1067.PubMedCrossRef Macks, R. J., & Reeve, R. E. (2007). The adjustment of non-disabled siblings of children with autism. Journal of Autism and Developmental Disorders, 37, 1060–1067.PubMedCrossRef
go back to reference Mates, T. E. (1990). Siblings of autistic children: Their adjustment and performance at home and school. Journal of Autism and Developmental Disorders, 20, 545–553.PubMedCrossRef Mates, T. E. (1990). Siblings of autistic children: Their adjustment and performance at home and school. Journal of Autism and Developmental Disorders, 20, 545–553.PubMedCrossRef
go back to reference McConachie, H., & Waring, M. (1997). Child psychology portfolio: Parental coping and support. Windsor, UK: NFER-Nelson. McConachie, H., & Waring, M. (1997). Child psychology portfolio: Parental coping and support. Windsor, UK: NFER-Nelson.
go back to reference Muris, P., Meesters, C., Eijkelenboom, A., & Vincken, M. (2004). The self-report version of the Strengths and Difficulties Questionnaire: Its psychometric properties in 8- to 13-year old non-clinical children. British Journal of Clinical Psychology, 43, 437–448.PubMedCrossRef Muris, P., Meesters, C., Eijkelenboom, A., & Vincken, M. (2004). The self-report version of the Strengths and Difficulties Questionnaire: Its psychometric properties in 8- to 13-year old non-clinical children. British Journal of Clinical Psychology, 43, 437–448.PubMedCrossRef
go back to reference Orsmond, G. I., & Seltzer, M. M. (2009). Adolescent siblings of individuals with an autism spectrum disorder: Testing a diathesis-stress model of sibling well-being. Journal of Autism and Developmental Disorders, 39, 1053–1065.PubMedCrossRef Orsmond, G. I., & Seltzer, M. M. (2009). Adolescent siblings of individuals with an autism spectrum disorder: Testing a diathesis-stress model of sibling well-being. Journal of Autism and Developmental Disorders, 39, 1053–1065.PubMedCrossRef
go back to reference Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 38, 1092–1103.PubMedCrossRef Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 38, 1092–1103.PubMedCrossRef
go back to reference Piers, E. V., & Herzberg, D. S. (2002). Piers-Harris Children’s Self-Concept Scale (2nd ed.). Los Angeles, CA: Western Psychological Services. Piers, E. V., & Herzberg, D. S. (2002). Piers-Harris Children’s Self-Concept Scale (2nd ed.). Los Angeles, CA: Western Psychological Services.
go back to reference Pilowsky, T., Yirmiya, N., Doppelt, O., Gross-Tsur, V., & Shalev, R. S. (2004). Social and emotional adjustment of siblings of children with autism. Journal of Child Psychology and Psychiatry, 45, 855–865.PubMedCrossRef Pilowsky, T., Yirmiya, N., Doppelt, O., Gross-Tsur, V., & Shalev, R. S. (2004). Social and emotional adjustment of siblings of children with autism. Journal of Child Psychology and Psychiatry, 45, 855–865.PubMedCrossRef
go back to reference Reichow, B. (2011). Overview of meta-analyses on early intensive behavioral intervention for young children with autism spectrum disorders. Journal of Autism and Developmental Disorders. doi: 10.1007/s10803-011-1218-9. Reichow, B. (2011). Overview of meta-analyses on early intensive behavioral intervention for young children with autism spectrum disorders. Journal of Autism and Developmental Disorders. doi: 10.​1007/​s10803-011-1218-9.
go back to reference Remington, B., Hastings, R. P., Kovshoff, H., degli Espinosa, F., Jahr, E., Brown, T., et al. (2007). Early intensive behavioural intervention: Outcomes for children with autism and their parents after two years. American Journal on Mental Retardation, 112, 418–438.PubMedCrossRef Remington, B., Hastings, R. P., Kovshoff, H., degli Espinosa, F., Jahr, E., Brown, T., et al. (2007). Early intensive behavioural intervention: Outcomes for children with autism and their parents after two years. American Journal on Mental Retardation, 112, 418–438.PubMedCrossRef
go back to reference Rivers, J. W., & Stoneman, Z. (2003). Sibling relationships when a child has autism: Marital stress and support coping. Journal of Autism and Developmental Disorders, 33, 383–394.PubMedCrossRef Rivers, J. W., & Stoneman, Z. (2003). Sibling relationships when a child has autism: Marital stress and support coping. Journal of Autism and Developmental Disorders, 33, 383–394.PubMedCrossRef
go back to reference Roeyers, H., & Mycke, K. (1995). Siblings of a child with autism, with mental retardation and with a normal development. Child: Care, Health and Development, 21, 305–319.CrossRef Roeyers, H., & Mycke, K. (1995). Siblings of a child with autism, with mental retardation and with a normal development. Child: Care, Health and Development, 21, 305–319.CrossRef
go back to reference Ross, P., & Cuskelly, M. (2006). Adjustment, sibling problems and coping strategies of brothers and sisters of children with autistic spectrum disorder. Journal of Intellectual and Developmental Disability, 31, 77–86.PubMedCrossRef Ross, P., & Cuskelly, M. (2006). Adjustment, sibling problems and coping strategies of brothers and sisters of children with autistic spectrum disorder. Journal of Intellectual and Developmental Disability, 31, 77–86.PubMedCrossRef
go back to reference Schwichtenberg, A., & Poehlmann, J. (2007). Applied behaviour analysis: Does intervention intensity relate to family stressors and maternal well-being? Journal of Intellectual Disability Research, 51, 598–605.PubMedCrossRef Schwichtenberg, A., & Poehlmann, J. (2007). Applied behaviour analysis: Does intervention intensity relate to family stressors and maternal well-being? Journal of Intellectual Disability Research, 51, 598–605.PubMedCrossRef
go back to reference Seltzer, M. M., Orsmond, G. I., & Esbensen, A. J. (2009). Siblings of individuals with an autism spectrum disorder: Sibling relationships and wellbeing in adolescence and adulthood. Autism, 13, 59–80.PubMedCrossRef Seltzer, M. M., Orsmond, G. I., & Esbensen, A. J. (2009). Siblings of individuals with an autism spectrum disorder: Sibling relationships and wellbeing in adolescence and adulthood. Autism, 13, 59–80.PubMedCrossRef
go back to reference Smentana, J. G., Campione-Barr, N., & Metzger, A. (2006). Adolescent development in interpersonal and societal contexts. Annual Review of Psychology, 57, 255–284.CrossRef Smentana, J. G., Campione-Barr, N., & Metzger, A. (2006). Adolescent development in interpersonal and societal contexts. Annual Review of Psychology, 57, 255–284.CrossRef
go back to reference Smith, T., Groen, A. D., & Wynn, J. W. (2000). Randomized trial of intensive early intervention for children with pervasive developmental disorder. American Journal on Mental Retardation, 105, 269–285.PubMedCrossRef Smith, T., Groen, A. D., & Wynn, J. W. (2000). Randomized trial of intensive early intervention for children with pervasive developmental disorder. American Journal on Mental Retardation, 105, 269–285.PubMedCrossRef
go back to reference South, M., Williams, B. J., McMahon, W. M., Owley, T., Filipek, P. A., et al. (2002). Utility of the Gilliam Autism Rating Scale in research and clinical populations. Journal of Autism and Developmental Disorders, 32, 593–599.PubMedCrossRef South, M., Williams, B. J., McMahon, W. M., Owley, T., Filipek, P. A., et al. (2002). Utility of the Gilliam Autism Rating Scale in research and clinical populations. Journal of Autism and Developmental Disorders, 32, 593–599.PubMedCrossRef
go back to reference Stoneman, Z. (1998). Research on siblings of children with mental retardation: Contributions of developmental theory and etiology. In J. A. Burack, R. M. Hodapp, & E. Zigler (Eds.), Handbook of mental retardation and development (pp. 669–692). Cambridge: Cambridge University Press. Stoneman, Z. (1998). Research on siblings of children with mental retardation: Contributions of developmental theory and etiology. In J. A. Burack, R. M. Hodapp, & E. Zigler (Eds.), Handbook of mental retardation and development (pp. 669–692). Cambridge: Cambridge University Press.
go back to reference Verté, S., Roeyers, H., & Buysse, A. (2003). Behavioural problems, social competence and self-concept in siblings of children with autism. Child: Care, Health and Development, 29, 193–205.CrossRef Verté, S., Roeyers, H., & Buysse, A. (2003). Behavioural problems, social competence and self-concept in siblings of children with autism. Child: Care, Health and Development, 29, 193–205.CrossRef
go back to reference Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6, 115–130.PubMedCrossRef Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6, 115–130.PubMedCrossRef
go back to reference Williams, K. R. (2006). The Son-Rise Program intervention for autism: Prerequisites for evaluation. Autism: The International Journal of Research and Practice, 10, 86–102.CrossRef Williams, K. R. (2006). The Son-Rise Program intervention for autism: Prerequisites for evaluation. Autism: The International Journal of Research and Practice, 10, 86–102.CrossRef
go back to reference Willliams, K. R., & Wishart, J. G. (2003). The Son-Rise Program intervention for autism: An investigation into family experiences. Journal of Intellectual Disability Research, 47, 291–299.CrossRef Willliams, K. R., & Wishart, J. G. (2003). The Son-Rise Program intervention for autism: An investigation into family experiences. Journal of Intellectual Disability Research, 47, 291–299.CrossRef
Metagegevens
Titel
Applied Behavior Analysis Programs for Autism: Sibling Psychosocial Adjustment During and Following Intervention Use
Auteur
Katie R. Cebula
Publicatiedatum
01-05-2012
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 5/2012
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-011-1322-x

Andere artikelen Uitgave 5/2012

Journal of Autism and Developmental Disorders 5/2012 Naar de uitgave