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There is a gap in our knowledge of aging with autism. The present study examined the applicability of the popular gerontology concept of “aging well” to autistic adults. Using survey data, a model of “aging well” was operationalised and applied to 92 autistic adults and 60 controls. A very small proportion (3.3%) of autistic adults were found to be aging well. Significantly less autistic adults were “maintaining physical and cognitive functioning” and “actively engaging with life” in comparison to controls. Whilst important differences in health and functioning status were found, the current dominant model of “aging well” is limited for examining autistic individuals. Suggested adjustments include development of a broader, more flexible and strengths -based model.
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American Psychiatric Association. (2013). Neurodevelopmental disorders. Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Association. https://doi.org/10.1176/appi.books.9780890425596.dsm01. CrossRef
Australian Bureau of Statistics. (2017). Autism in Australia. Canberra: Australian Bureau of Statistics
Bosnes, I., Almkvist, O., Bosnes, O., Stordal, E., Romild, U., & Nordahl, H. M. (2016). Prevalence and correlates of successful aging in a population-based sample of older adults: The HUNT study. International Psychogeriatrics, 29(3), 1–10. https://doi.org/10.1017/S1041610216001861.
Braden, B. B., Smith, C. J., Thompson, A., Glaspy, T. K., Wood, E., Vatsa, D., … Baxter, L. C. (2017). Executive function and functional and structural brain differences in middle-age adults with autism spectrum disorder. Autism Research, 10(12), 1945–1959. https://doi.org/10.1002/aur.1842. CrossRefPubMed
Brugha, T. S., Spiers, N., Bankart, J., Cooper, S.-A., McManus, S., Scott, F. J., … Tyrer, F. (2016). Epidemiology of autism in adults across age groups and ability levels. The British Journal of Psychiatry: The Journal of Mental Science. https://doi.org/10.1192/bjp.bp.115.174649.
Chowdhury, M., Benson, B. A., & Hillier, A. (2010). Changes in restricted repetitive behaviors with age: A study of high-functioning adults with autism spectrum disorders. Research in Autism Spectrum Disorders, 4(2), 210–216. https://doi.org/10.1016/j.rasd.2009.09.006. CrossRef
Cusack, J., Shaw, S., Spiers, J., & Sterry, R. (2016). Personal tragedies, public crisis: The urgent need for a national response to early death in autism. London: Autistica.
Fortuna, R. J., Robinson, L., Smith, T. H., Meccarello, J., Bullen, B., Nobis, K., & Davidson, P. W. (2015). Health conditions and functional status in adults with autism: A cross-sectional evaluation. Journal of General Internal Medicine. https://doi.org/10.1007/s11606-015-3509-x. PubMedCentral
Freedman, V. A. (2014). Research gaps in the demography of aging with disability. Disability and Health Journal, 7, S60–S63. https://doi.org/10.1016/j.dhjo.2013.04.009. CrossRefPubMedPubMedCentral
Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry and Allied Disciplines, 45(2), 212–229. https://doi.org/10.1111/j.1469-7610.2004.00215.x. CrossRef
Jones, K. B., Cottle, K., Bakian, A., Farley, M., Bilder, D., Coon, H., & McMahon, W. M. (2015). A description of medical conditions in adults with autism spectrum disorder: A follow-up of the 1980s Utah/UCLA Autism Epidemiologic Study. Autism. https://doi.org/10.1177/1362361315594798.
Khanna, R., Jariwala, K., & West-Strum, D. (2015). Validity and reliability of the Medical Outcomes Study Short-Form Health Survey version 2 (SF-12v2) among adults with autism. Research in Developmental Disabilities, 43–44, 51–60. https://doi.org/10.1016/j.ridd.2015.06.006. CrossRefPubMed
Levy, A., & Perry, A. (2011). Outcomes in adolescents and adults with autism: a review of the literature. Research in Autism Spectrum Disorders, 5, 1271–1282. CrossRef
Maenner, M. J., Smith, L. E., Hong, J., Makuch, R., Greenberg, J. S., & Mailick, M. R. (2013). Evaluation of an activities of daily living scale for adolescents and adults with developmental disabilities. Disability and Health Journal, 6(1), 8–17. https://doi.org/10.1016/j.dhjo.2012.08.005. CrossRefPubMed
McLaughlin, S. J., Connell, C. M., Heeringa, S. G., Li, L. W., & Roberts, J. S. (2010). Successful aging in the United States: Prevalence estimates from a national sample of older adults. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 65(2), 216–226. https://doi.org/10.1093/geronb/gbp101. CrossRef
Minkler, M., & Fadem, P. (2002). Successful aging: a disability perspective. Journal of Disability Policy Studies, 12(4), 229–235. CrossRef
Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Boisclair, W. C., Ashkenazy, E., & Baggs, A. (2013). Comparison of healthcare experiences in autistic and non-autistic adults: A cross-sectional online survey facilitated by an academic-community partnership. Journal of General Internal Medicine, 28(6), 761–769. https://doi.org/10.1007/s11606-012-2262-7. CrossRefPubMed
Perkins, E. A., & Berkman, K. A. (2012). Into the unknown: Aging with autism spectrum disorders. American Journal on Intellectual and Developmental Disabilities, 117(6), 478–496. https://doi.org/10.1352/1944-7558-117.6.478. CrossRefPubMed
Pinto, J. M., & Neri, A. L. (2017). Trajectories of social participation in old age: a systematic literature review. Brazilian Journal of Geriatrics and Gerontology, 20(2), 259–272. https://doi.org/10.1590/1981-22562017020.160077.
Rosenthal, M., Wallace, G. L., Lawson, R., Wills, M. C., Yerys, B. E., & Kenworthy, L. (2013). Impairments in real world executive function increase from childhood to adolescence in autism spectrum disorders. Neuropsychology, 27(1), 13–18. https://doi.org/10.1037/a0031299.Impairments. CrossRefPubMedPubMedCentral
Schmidt, L., Kirchner, J., Strunz, S., Broźus, J., Ritter, K., Roepke, S., & Dziobek, I. (2015). Psychosocial functioning and life satisfaction in adults with autism spectrum disorder without intellectual impairment. Journal of Clinical Psychology, 71(12), 1259–1268. https://doi.org/10.1002/jclp.22225. CrossRefPubMed
Smith, L. E., Maenner, M. J., & Seltzer, M. M. (2012). Developmental trajectories in adolescents and adults with autism: The case of daily living skills. Journal of the American Academy of Child & Adolescent Psychiatry, 51(6), 622–631. CrossRef
StataCorp. (2015). Stata statistical software. College Station: StataCorp LP.
Stowe, J. D., & Cooney, T. M. (2014). Examining Rowe and Kahn’s concept of successful aging: Importance of taking a life course perspective. The Gerontologist, 55(1), 1–8. https://doi.org/10.1093/geront/gnu055.
Szatmari, P., Bryson, S., Duku, E., Vaccarella, L., Zwaigenbaum, L., Bennett, T., & Boyle, M. H. (2009). Similar developmental trajectories in autism and Asperger syndrome: From early childhood to adolescence. The Journal of Child Psychology and Psychiatry, 12, 1459–1467. https://doi.org/10.1111/j.1469-7610.2009.02123.x. CrossRef
Tobin, M. C., Drager, K. D. R., & Richardson, L. F. (2014). A systematic review of social participation for adults with autism spectrum disorders: Support, social functioning, and quality of life. Research in Autism Spectrum Disorders, 8(3), 214–229. https://doi.org/10.1016/j.rasd.2013.12.002. CrossRef
Tyler, C. V., Schramm, S. C., Karafa, M., Tang, A. S., & Jain, A. K. (2011). Chronic disease risks in young adults with autism spectrum disorder: Forewarned is forearmed. American Association on Intellectual and Developmental Disabilities, 116(5), 371–380. CrossRef
Üstün, T. B., Chatterji, S., Kostanjsek, N., Rehm, J., Kennedy, C., Epping-Jordan, J., … Pull, C. (2010). Developing the world health organization disability assessment schedule 2.0. Bulletin of the World Health Organization, 88(11), 815–823. https://doi.org/10.2471/BLT.09.067231. CrossRefPubMedPubMedCentral
Wehman, P., Brooke, V., Brooke, A. M., Ham, W., Schall, C., McDonough, J., … Avellone, L. (2016). Employment for adults with autism spectrum disorders: A retrospective review of a customized employment approach. Research in Developmental Disabilities, 53–54, 61–72. https://doi.org/10.1016/j.ridd.2016.01.015. CrossRefPubMed
Wright, S. D., & Wadsworth, A. M. (2015). Autism and aging: Research, community services and programs, and policy issues. The Gerontologist, 55(Suppl_2), 480.
Wright, S. D., Wright, C. A., D’Astous, V., & Wadsworth, A. M. (2016). Autism aging. Gerontology & Geriatrics Education, 00(00), 1–17. https://doi.org/10.1080/02701960.2016.1247073. CrossRef
- Aging Well on the Autism Spectrum: An Examination of the Dominant Model of Successful Aging
Ye In Hwang
Julian N. Trollor
- Springer US
Journal of Autism and Developmental Disorders
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432