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Journal of Autism and Developmental Disorders

Gepubliceerd in:

01-11-2007 | Original paper

Access to Care for Autism-Related Services

Auteurs: Kathleen C. Thomas, Alan R. Ellis, Carolyn McLaurin, Julie Daniels, Joseph P. Morrissey

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 10/2007

Abstract

This paper identifies family characteristics associated with use of autism-related services. A telephone or in-person survey was completed during 2003–2005 by 383 North Carolina families with a child 11 years old or younger with ASD. Access to care is limited for racial and ethnic minority families, with low parental education, living in nonmetropolitan areas, and not following a major treatment approach. Service use is more likely when parents have higher stress. Families use a broad array of services; the mix varies with child ASD diagnosis and age group. Disparities in service use associated with race, residence and education point to the need to develop policy, practice and family-level interventions that can address barriers to services for children with ASD.

vorige artikel Relevance of Donepezil in Enhancing Learning and Memory in Special Populations: A Review of the Literature

volgende artikel The Impact of Meaning and Dimensionality on Copying Accuracy in Individuals with Autism

Aday, L., & Andersen, R. (1975). Development of indices of access to medical care. Ann Arbor, MI: Health Administration Press.

Aday, L. (1989). Designing and conducting health surveys. San Francisco, CA: Jossey-Bass.

Birenbaum, A., Guyot, D., & Cohen, H. (1990). Health care financing for severe developmental disabilities (Vol. 14). Washington, DC: American Association on Mental Retardation.

Birenbaum, A., & Cohen, H. (1993). On the importance of helping families: policy implications from a national study. Mental Retardation, 31(2), 67–74.PubMed

Bodfish, J. (2004). Treating the core features of autism: are we there yet? Mental Retardation and Developmental Disabilities Research Reviews, 10(318–326).

Campbell, M., Schopler, E., Cueva, J., & Hallin, A. (1996). Treatment of autistic disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 35(134–143).

Carey, B. (2004, December 27). To treat autism, parents take a leap of faith. The New York Times.

Davidoff, A., Yemane, A., & Hill, I. (2004). Public insurance eligibility and enrollment for special health care needs children. Health Care Financing Review, 26(1), 119–135.PubMed

Dawson, G., & Osterling, J. (1997). Early intervention in autism. In Guralnick (Ed.), The Effectiveness of early intervention (pp. 307–326). Baltimore, MD: Paul H. Brookes.

Dunn, M., Burbine, R., Bowers, C., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–52.PubMedCrossRef

Edwards, C. (2003) Diversity and cultural competence, Part 2: Issues of practical conceptualization and implementation. The North Carolina Psychologist, November-December 2003.

Factor, D., Perry, A., & Freeman, N. (1990). Brief report: social support, and respite care use in families with autistic children. Journal of Autism and Developmental Disability, 20(1), 139–146.CrossRef

Fombonne, E. (2002). Epidemiological trends in rates of autism. Molecular Psychiatry, 7, S4–S6.PubMedCrossRef

Fombonne, E. (2003). Epidemiological surveys of autism and other pervasive developmental disorders: an update. Journal of Autism and Developmental Disability, 33, 365–382.CrossRef

Friedrich, W., Greenberg, M., & Crnic, K. (1983). A short-form of the questionnaire on resources and stress. American Journal of Mental Deficiency, 88, 41–48.PubMed

Green, V., Pituch, K., Itchon, J., Choi, A., O’Reilly, M., & Sigafoos, J. (2006). Internet survey of treatments used by parents of children with autism. Research in Developmental Disabilities, 27, 70–84.PubMedCrossRef

Gross, J. (2004, January 30). As autism cases rise, parents run frenzied race to get help. The New York Times.

Hare, D., Pratt, C., Burton, M., Bromley, J., & Emerson, E. (2004). The health and social care needs of family carers supporting adults with autistic spectrum disorders. Autism, 8(4), 425–444.PubMedCrossRef

Hastings, R., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disability, 31(3), 327–336.CrossRef

Howlin, P., & Asgharian, A. (1999) The diagnosis of autism and asperger syndrome: findings from a survey of 770 families. Developmental Medicine and Child Neurology, 41(12), 834–839.PubMedCrossRef

Hurth, J., Shaw, E., Izeman, S., Whaley, K., & Rogers, S. (1999). Areas of agreement about effective practices among programs serving young children with autism spectrum disorders. Infants and Young Children, 12, 17–26.CrossRef

Interagency Autism Coordinating Committee. (2005). Autism Spectrum Disorders (ASD) Roadmap.

Kohler, F. (2000). Examining the services received by young children with autism and their families: a survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14, 150–158.CrossRef

Kraus, M., Gulley, S., Sciegaii, M., & Wells, N. (2003). Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retardation, 41(5), 329–339.

Lau, A., Garland, A., Yeh, M., et al. (2004). Race/ethnicity and inter-informant agreement in assessing adolescent psyhopathology. Journal of Emotional and Behavioral Discorders 12, 145–156.

Levy, S., Mandell, D., Merher, S., Ittenbach, R., & Pinto-Martin, J. (2003). Use of complementary and alternative medicine among children recently diagnosed with autistic spectrum disorder. Developmental and Behavioral Pediatrics, 24, 418–423.CrossRef

Luther, E., Canham, D., & Cureton, V. (2005). Coping and social support for parents of children with autism. Journal of School Nursing, 21(1), 40–47.PubMedCrossRef

Mandell, D., Listerus, J., Levy, S., & Pinto-Martin, J. (2002). Race differences in the age at diagnosis among medicaid-eligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41(12), 1447–1453.PubMedCrossRef

Marcus, L., Garfinkle, A., & Wolery, M. (2001). Issues in early diagnosis and intervention with young children with autism. In E., Schopler, N., Yirmiya, C., Schlman, & L., Marcus (Eds.), The Research Basis for Autism Intervention. New York: Kluwer Academic/Plenum.

McEachin, J., Smith, T., & Lovaas, O. (1993). Long-term outcome for children with autism who received early intensive behavioral treatment. American Journal of Mental Retardation, 97, 359–372.PubMed

Newacheck, P., Hung, Y., & Wright, K. (2002). Racial and ethnic disparities in access to care for children with special health care needs. Ambulatory Pediatrics, 2(4), 247–254.PubMedCrossRef

Osgood, D., Foster, F., Flanagan, C., & Ruth, G. (2005). On your own without a net: the transition to adulthood for vulnerable populations. Chicago: University of Chicago Press.

Rhoades, J., & Cohen, J. (2004). The uninsured in America, 1996–2003: Estimates for the U.S. population under age 65 (Medical Expenditures Panel Survey Statistical Brief #45). Rockville, MD: Agency for Healthcare Research and Quality.

Rogers, S. (1998). Neuropsychology of autism in young children and its implications for early intervention. Mental Retardation and Developmental Disabilities Research Reviews, 4, 104–112.CrossRef

Rousey, A., Best, S., & Blacher, J. (1992). Mothers’ and fathers’ perceptions of stress and coping with children who have severe disabilities. American Journal of Mental Retardation, 97(1), 99–110.PubMed

Ruble, L., Heflinger, C., Renfrew, J., & Saunders, R. (2005). Access and service use by children with autism spectrum disorders in medicaid managed care. Journal of Autism and Developmental Disorders, 35(1), 3–13.PubMedCrossRef

Schnittker, J. (2003) Misgivings or medicine?: african Americans’ skepticism of psychiatric medication. Journal of Health and Social Behavior, 44, 506–524.PubMedCrossRef

Smith, T., & Antolovich, M. (2000). Parental perceptions of supplemental interventions received by young children with autism in intensive behavior analytic treatment. Behavioral Interventions, 15, 83–97.CrossRef

Stevens, G., & Shi, L. (2003). Racial and ethnic disparities in the primary care experiences of children: a review of the literature. Medical Care Research and Review, 60(1), 3–30.PubMedCrossRef

Stuber, J., & Bradley, E. (2005). Barriers to medicaid enrollment: who is at risk? American Journal of Public Health, 95(2), 292–298.PubMedCrossRef

Svarstad, B., Chewning, B., Sleath, B., & Claesson, C. (1999). The brief medication questionnaire: a tool for screening patient adherence and barriers to adherence. Patient Education and Counseling, 37(2), 113–124.PubMedCrossRef

Thomas, K., Morrissey, J., & McLaurin, C. (2006). Use of autism-related services by families and children. Journal of Autism and Developmental Disorders, forthcoming.

Tobing, L., & Glenwick, D. (2002). Relation of the childhood autism rating scale-parent version to diagnosis, stress and age. Research in Developmental Disabilities, 23, 211–223.PubMedCrossRef

U.S. Census. (2000). Profile of Selected Economic Characteristics: 2000 (Census 2000 Summary File 3). Washington, DC: U.S. Census.

U.S. Census. (2001). Persons by race, age and sex 2000: North Carolina. Washington, DC: U.S. Census.

U.S. Census. (2003). Median Family Income in the Past 12 months (2003 Inflation-Adjusted Dollars) By Family Size: North Carolina. Washington, DC: U.S. Census.

USDA (2004) Measuring rurality: rural-urban continuum codes, http://www.ers.usda.gov/Briefing/Rurality/RuralUrbCon/, accessed 8–2–06.

Wieder, S., & Greenspan, S. (2003). Climbing the symbolic ladder in the DIR model through floor time/interactive play. Autism, 7, 425–435.PubMedCrossRef

Titel: Access to Care for Autism-Related Services
Auteurs: Kathleen C. Thomas
Alan R. Ellis
Carolyn McLaurin
Julie Daniels
Joseph P. Morrissey
Publicatiedatum: 01-11-2007
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 10/2007
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-006-0323-7

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