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06-01-2018 | Original Paper

Acceptance or Despair? Maternal Adjustment to Having a Child Diagnosed with Autism

Auteurs: Nikko S. Da Paz, Bryna Siegel, Michael A. Coccia, Elissa S. Epel

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2018

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Abstract

Psychological adjustment to having one’s child diagnosed with an autism spectrum disorder has important implications for a parent’s mental health. In a longitudinal study, we examined the association between maternal adjustment to the diagnosis and measures of distress and well-being in 90 mothers of children with autism (baseline and 18 months). We used a novel 30-item scale “Adjustment to the Diagnosis of Autism.” Factor analysis identified three dimensions of adjustment: acceptance, self-blame, and despair. Acceptance appeared to be a protective response, as it was associated with lower depressive symptoms, cross-sectionally and over time. Conversely, caregivers with increasing levels of self-blame and despair about the diagnosis over 18 months had worsening of mental health and satisfaction with life during this period.
Literatuur
go back to reference American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th edn.). Washington, DC. American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th edn.). Washington, DC.
go back to reference Barroso, N. E., Mendez, L., Graziano, P. A., & Bagner, D. M. (2017). Parenting stress through the lens of different clinical groups: A systematic review and meta-analysis. Journal of Abnormal Child Psychology, 45, 1–13.CrossRef Barroso, N. E., Mendez, L., Graziano, P. A., & Bagner, D. M. (2017). Parenting stress through the lens of different clinical groups: A systematic review and meta-analysis. Journal of Abnormal Child Psychology, 45, 1–13.CrossRef
go back to reference Berry, J. O., & Jones, W. H. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12, 463–472.CrossRef Berry, J. O., & Jones, W. H. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12, 463–472.CrossRef
go back to reference Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208–215.CrossRef Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208–215.CrossRef
go back to reference Burns, D., & Sayers, S. (1992). Development and validation of a brief relationship satisfaction scale. Philadelphia, PA: Unpublished manuscript, Department of Psychiatry, Presbyterian Medical Center of Philadelphia. Burns, D., & Sayers, S. (1992). Development and validation of a brief relationship satisfaction scale. Philadelphia, PA: Unpublished manuscript, Department of Psychiatry, Presbyterian Medical Center of Philadelphia.
go back to reference Cohen, S., & Williamson, G. (1988). Perceived stress in a probability sample of the United States. In S. Spacapam & S. Oskamp (Eds.), The social psychology of health: Claremont symposium on applied social psychology (pp. 31–67). Newbury Park, CA: Sage. Cohen, S., & Williamson, G. (1988). Perceived stress in a probability sample of the United States. In S. Spacapam & S. Oskamp (Eds.), The social psychology of health: Claremont symposium on applied social psychology (pp. 31–67). Newbury Park, CA: Sage.
go back to reference Da Paz, N. S., & Wallander, J. L. (2017). Interventions that target improvements in mental health for parents of children with autism spectrum disorders: A narrative review. Clinical Psychology Review, 51, 1–14.CrossRefPubMed Da Paz, N. S., & Wallander, J. L. (2017). Interventions that target improvements in mental health for parents of children with autism spectrum disorders: A narrative review. Clinical Psychology Review, 51, 1–14.CrossRefPubMed
go back to reference Dababnah, S., & Parish, S. L. (2016). A comprehensive literature review of randomized controlled trials for parents of young children with autism spectrum disorder. Journal of Evidence-Informed Social Work, 13, 277–292.CrossRefPubMed Dababnah, S., & Parish, S. L. (2016). A comprehensive literature review of randomized controlled trials for parents of young children with autism spectrum disorder. Journal of Evidence-Informed Social Work, 13, 277–292.CrossRefPubMed
go back to reference Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291.CrossRefPubMed Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38, 1278–1291.CrossRefPubMed
go back to reference De Andrés-García, S., Moya-Albiol, L., & González-Bono, E. (2012). Salivary cortisol and immunoglobulin A: Responses to stress as predictors of health complaints reported by caregivers of offspring with autistic spectrum disorder. Hormones and Behavior, 62, 464–474.CrossRefPubMed De Andrés-García, S., Moya-Albiol, L., & González-Bono, E. (2012). Salivary cortisol and immunoglobulin A: Responses to stress as predictors of health complaints reported by caregivers of offspring with autistic spectrum disorder. Hormones and Behavior, 62, 464–474.CrossRefPubMed
go back to reference Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49, 71–75.CrossRefPubMed Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49, 71–75.CrossRefPubMed
go back to reference Gottlieb, B. (1988). The dislocations scale. Guelph, ON: Unpublished manuscript: University of Guelph Gottlieb, B. (1988). The dislocations scale. Guelph, ON: Unpublished manuscript: University of Guelph
go back to reference Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642.CrossRefPubMed Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642.CrossRefPubMed
go back to reference Lazarus, R. S., Cohen, J. B., Folkman, S., Kanner, A., & Schaefer, C. (1980). Psychological stress and adaptation: Some unresolved issues. In H. Selye (Ed.), Selye’s guide to stress research (Vol. 1, pp. 90–117). New York: Van Nostrand Reinhold. Lazarus, R. S., Cohen, J. B., Folkman, S., Kanner, A., & Schaefer, C. (1980). Psychological stress and adaptation: Some unresolved issues. In H. Selye (Ed.), Selye’s guide to stress research (Vol. 1, pp. 90–117). New York: Van Nostrand Reinhold.
go back to reference Lloyd, T., & Hastings, R. (2009). Hope as a psychological resilience factor in mothers and fathers of children with intellectual disabilities. Journal of Intellectual Disability Research, 53, 957–968.CrossRefPubMed Lloyd, T., & Hastings, R. (2009). Hope as a psychological resilience factor in mothers and fathers of children with intellectual disabilities. Journal of Intellectual Disability Research, 53, 957–968.CrossRefPubMed
go back to reference Lord, B., Ungerer, J., & Wastell, C. (2008). Implications of resolving the diagnosis of PKU for parents and children. Journal of Pediatric Psychology, 33, 855–866.CrossRefPubMedPubMedCentral Lord, B., Ungerer, J., & Wastell, C. (2008). Implications of resolving the diagnosis of PKU for parents and children. Journal of Pediatric Psychology, 33, 855–866.CrossRefPubMedPubMedCentral
go back to reference Lovell, B., Moss, M., & Wetherell, M. A. (2012). The psychosocial, endocrine and immune consequences of caring for a child with autism or ADHD. Psychoneuroendocrinology, 37, 534–542.CrossRefPubMed Lovell, B., Moss, M., & Wetherell, M. A. (2012). The psychosocial, endocrine and immune consequences of caring for a child with autism or ADHD. Psychoneuroendocrinology, 37, 534–542.CrossRefPubMed
go back to reference Lovell, B., Moss, M., & Wetherell, M. A. (2016). Assessing the feasibility and efficacy of written benefit-finding for caregivers of children with autism: A pilot study. Journal of Family Studies, 22, 32–42.CrossRef Lovell, B., Moss, M., & Wetherell, M. A. (2016). Assessing the feasibility and efficacy of written benefit-finding for caregivers of children with autism: A pilot study. Journal of Family Studies, 22, 32–42.CrossRef
go back to reference Osborne, L. A., Mchugh, L., Saunders, J., & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 38, 1092–1103.CrossRefPubMed Osborne, L. A., Mchugh, L., Saunders, J., & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 38, 1092–1103.CrossRefPubMed
go back to reference Pianta, R., & Marvin, R. (1992). The reaction to diagnosis classification system. Charlottesville, VA: Unpublished manuscript, University of Virginia. Pianta, R., & Marvin, R. (1992). The reaction to diagnosis classification system. Charlottesville, VA: Unpublished manuscript, University of Virginia.
go back to reference Rush, A. J., Giles, D. E., Schlesser, M. A., Fulton, C. L., Weissenburger, J., & Burns, C. (1986). The inventory for depressive symptomatology (IDS): Preliminary findings. Psychiatry Research, 18, 65–87.CrossRefPubMed Rush, A. J., Giles, D. E., Schlesser, M. A., Fulton, C. L., Weissenburger, J., & Burns, C. (1986). The inventory for depressive symptomatology (IDS): Preliminary findings. Psychiatry Research, 18, 65–87.CrossRefPubMed
go back to reference Ryff, C. D. (1989). Happiness is everything, or is it? Explorations on the meaning of psychological well-being. Journal of Personality and Social Psychology, 57, 1069.CrossRef Ryff, C. D. (1989). Happiness is everything, or is it? Explorations on the meaning of psychological well-being. Journal of Personality and Social Psychology, 57, 1069.CrossRef
go back to reference Schopler, E., Reichler, R. J., Devellis, R. F., & Daly, K. (1980). Toward objective classification of childhood autism: Childhood Autism Rating Scale (CARS). Journal of Autism and Developmental Disorders, 10, 91–103.CrossRefPubMed Schopler, E., Reichler, R. J., Devellis, R. F., & Daly, K. (1980). Toward objective classification of childhood autism: Childhood Autism Rating Scale (CARS). Journal of Autism and Developmental Disorders, 10, 91–103.CrossRefPubMed
go back to reference Sheeran, T., Marvin, R. S., & Pianta, R. (1997). Mothers’ resolution of their childs’s diagnosis and self-reported measures of parenting stress, marital relations, and social support. Journal of Pediatric Psychology, 22, 197–212.CrossRefPubMed Sheeran, T., Marvin, R. S., & Pianta, R. (1997). Mothers’ resolution of their childs’s diagnosis and self-reported measures of parenting stress, marital relations, and social support. Journal of Pediatric Psychology, 22, 197–212.CrossRefPubMed
go back to reference Tehee, E., Honan, R., & Hevey, D. (2008). Factors contributing to stress in parents of individuals with autistic spectrum disorders. Journal of Applied Research in Intellectual Disabilities, 22, 34–42.CrossRef Tehee, E., Honan, R., & Hevey, D. (2008). Factors contributing to stress in parents of individuals with autistic spectrum disorders. Journal of Applied Research in Intellectual Disabilities, 22, 34–42.CrossRef
go back to reference Townshend, K., Jordan, Z., Stephenson, M., & Tsey, K. (2016). The effectiveness of mindful parenting programs in promoting parents’ and children’s wellbeing: A systematic review. JBI Database of Systematic Reviews and Implementation Reports, 14, 139–180.CrossRefPubMed Townshend, K., Jordan, Z., Stephenson, M., & Tsey, K. (2016). The effectiveness of mindful parenting programs in promoting parents’ and children’s wellbeing: A systematic review. JBI Database of Systematic Reviews and Implementation Reports, 14, 139–180.CrossRefPubMed
go back to reference Whitmore, K. E. (2016). Respite care and stress among caregivers of children with autism spectrum disorder: An integrative review. Journal of Pediatric Nursing, 31, 630–652.CrossRefPubMed Whitmore, K. E. (2016). Respite care and stress among caregivers of children with autism spectrum disorder: An integrative review. Journal of Pediatric Nursing, 31, 630–652.CrossRefPubMed
Metagegevens
Titel
Acceptance or Despair? Maternal Adjustment to Having a Child Diagnosed with Autism
Auteurs
Nikko S. Da Paz
Bryna Siegel
Michael A. Coccia
Elissa S. Epel
Publicatiedatum
06-01-2018
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3450-4

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