Skip to main content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Child and Family Studies 10/2016

25-06-2016 | Original Paper

A Therapeutic Recreation Camp for Children with Congenital Heart Disease: Examining Impact on the Psychosocial Well-Being of Parents

Auteurs: Lauren C. White, Fiona J. Moola, Joel A. Kirsh, Guy E. J. Faulkner

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 10/2016

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Therapeutic recreation camps have been considered to be an effective context for improving the psychosocial functioning of children with congenital heart disease (CHD). However, there is limited research regarding their impact on parents. Nine parents participated in two semi-structured interviews before and after their children attended a camp for children with CHD. Parents described their perceptions of their children’s camp experiences and identified the psychosocial utility of camp for themselves. Camp enabled parents to let their children grow and be independent, and helped reduce parents’ restricting and overprotective behaviours. Camp also provided parents with respite care, which alleviated their need to be ‘cardiac’ parents. These findings strengthen the case for therapeutic recreation camps and underscore the importance of expanding camp access to more families affected by CHD.
Literatuur
go back to reference Agha, M. M., Glazier, R. H., Moineddin, R., Moore, A. M., & Guttmann, A. (2011). Socioeconomic status and prevalence of congenital heart defects: Does universal access to health care system eliminate the gap? Birth Defects Research, 91, 1011–1018. doi: 10.​1002/​bdra.​22857. CrossRefPubMed Agha, M. M., Glazier, R. H., Moineddin, R., Moore, A. M., & Guttmann, A. (2011). Socioeconomic status and prevalence of congenital heart defects: Does universal access to health care system eliminate the gap? Birth Defects Research, 91, 1011–1018. doi: 10.​1002/​bdra.​22857. CrossRefPubMed
go back to reference Bloomberg, L. D., & Volpe, M. (2008). Completing your qualitative dissertation: A roadmap from beginning to end. Thousand Oaks: Sage. CrossRef Bloomberg, L. D., & Volpe, M. (2008). Completing your qualitative dissertation: A roadmap from beginning to end. Thousand Oaks: Sage. CrossRef
go back to reference Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. London: Sage. Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. London: Sage.
go back to reference Bultas, M. W., Budhathoki, C., & Balakas, K. (2013). Evaluation of child and parent outcomes after a pediatric cardiac camp experience. Journal Specialists in Pediatric Nursing, 18, 320–328. doi: 10.​1111/​jspn.​12040. Bultas, M. W., Budhathoki, C., & Balakas, K. (2013). Evaluation of child and parent outcomes after a pediatric cardiac camp experience. Journal Specialists in Pediatric Nursing, 18, 320–328. doi: 10.​1111/​jspn.​12040.
go back to reference Elliot, R., Fischer, C. T., & Rennie, D. L. (1999). Evolving guidelines for publication of qualitative research studies in psychology and related fields. British Journal of Clinical Psychology, 38, 215–229. doi: 10.​1348/​014466599162782. CrossRef Elliot, R., Fischer, C. T., & Rennie, D. L. (1999). Evolving guidelines for publication of qualitative research studies in psychology and related fields. British Journal of Clinical Psychology, 38, 215–229. doi: 10.​1348/​014466599162782. CrossRef
go back to reference Esterberg, K. G. (2002). Qualitative methods in social research. Boston: McGraw Hill. Esterberg, K. G. (2002). Qualitative methods in social research. Boston: McGraw Hill.
go back to reference Goodwin, D. L., & Staples, K. (2005). The meaning of summer camp experiences to youths with disabilities. Adapted Physical Activity Quarterly, 22, 160–178. CrossRef Goodwin, D. L., & Staples, K. (2005). The meaning of summer camp experiences to youths with disabilities. Adapted Physical Activity Quarterly, 22, 160–178. CrossRef
go back to reference Lawoko, S., & Soares, J. J. (2003). Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Quality of Life Research, 12, 655–666. doi: 10.​1023/​A:​1025114331419. CrossRefPubMed Lawoko, S., & Soares, J. J. (2003). Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Quality of Life Research, 12, 655–666. doi: 10.​1023/​A:​1025114331419. CrossRefPubMed
go back to reference Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic Inquiry. Newbury Park: Sage. Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic Inquiry. Newbury Park: Sage.
go back to reference Linde, L. M., Rasof, B., Dunn, O. J., & Rabb, E. (1966). Attitudinal factors in congenital heart disease. Pediatrics, 38, 92–101. PubMed Linde, L. M., Rasof, B., Dunn, O. J., & Rabb, E. (1966). Attitudinal factors in congenital heart disease. Pediatrics, 38, 92–101. PubMed
go back to reference Mackey, M. C. (2012). Evaluation of qualitative research. In P. Munhall (Ed.), Nursing research: A qualitative perspective (5th ed., pp. 517–531). Toronto: Jones and Bartlett. Mackey, M. C. (2012). Evaluation of qualitative research. In P. Munhall (Ed.), Nursing research: A qualitative perspective (5th ed., pp. 517–531). Toronto: Jones and Bartlett.
go back to reference Moola, F., Faulkner, G. E., Kirsh, J. A., & Kilburn, J. (2008). Physical activity and sport participation in youth with congenital heart disease: Perceptions of children and parents. Adapted Physical Activity Quarterly, 25, 49–70. CrossRefPubMed Moola, F., Faulkner, G. E., Kirsh, J. A., & Kilburn, J. (2008). Physical activity and sport participation in youth with congenital heart disease: Perceptions of children and parents. Adapted Physical Activity Quarterly, 25, 49–70. CrossRefPubMed
go back to reference Moola, F. J., Faulkner, G. E., White, L., & Kirsh, J. A. (2014). The psychological and social impact of camp for children with chronic illnesses: A systematic review update. Child: Care Health and Development, 40, 615–631. doi: 10.​1111/​cch.​12114. Moola, F. J., Faulkner, G. E., White, L., & Kirsh, J. A. (2014). The psychological and social impact of camp for children with chronic illnesses: A systematic review update. Child: Care Health and Development, 40, 615–631. doi: 10.​1111/​cch.​12114.
go back to reference Munhall, P. (2012). Nursing Research: A qualitative perspective (5th ed.). Toronto: Jones and Bartlett Learning. Munhall, P. (2012). Nursing Research: A qualitative perspective (5th ed.). Toronto: Jones and Bartlett Learning.
go back to reference Patton, M. Q. (1990). Qualitative evaluation and research methods (2nd ed.). Newbury Park: Sage. Patton, M. Q. (1990). Qualitative evaluation and research methods (2nd ed.). Newbury Park: Sage.
go back to reference Shelton, K. J., & Witt, P. A. (2011). Therapeutic camps as respite care providers: Benefits for families of children with disabilities. Therapeutic Recreation Journal, 45, 17–31. Shelton, K. J., & Witt, P. A. (2011). Therapeutic camps as respite care providers: Benefits for families of children with disabilities. Therapeutic Recreation Journal, 45, 17–31.
go back to reference Simons, L. E., Blount, R. L., Campbell, R., Hubbard, A., Goodwin, B., Devine, K., & Benoit, M. (2007). Decreases in anxiety associated with participation in a camp for children with cardiac defects. Cardiology in the Young, 17, 631–637. doi: 10.​1017/​s104795110700148​5. CrossRefPubMed Simons, L. E., Blount, R. L., Campbell, R., Hubbard, A., Goodwin, B., Devine, K., & Benoit, M. (2007). Decreases in anxiety associated with participation in a camp for children with cardiac defects. Cardiology in the Young, 17, 631–637. doi: 10.​1017/​s104795110700148​5. CrossRefPubMed
go back to reference Sparkes, A. C., & Smith, B. (2014). Qualitative research methods in sport, exercise and health: From process to product. London: Routledge. Sparkes, A. C., & Smith, B. (2014). Qualitative research methods in sport, exercise and health: From process to product. London: Routledge.
go back to reference Wu, Y. P., Prout, K., Roberts, M. C., Parikshak, S., & Amylon, M. D. (2011). Assessing experiences of children who attended a camp for children with cancer and their siblings: A preliminary study. Child and Youth Care Forum, 40, 121–133. doi: 10.​1007/​s10566-010-9123-5. CrossRef Wu, Y. P., Prout, K., Roberts, M. C., Parikshak, S., & Amylon, M. D. (2011). Assessing experiences of children who attended a camp for children with cancer and their siblings: A preliminary study. Child and Youth Care Forum, 40, 121–133. doi: 10.​1007/​s10566-010-9123-5. CrossRef
Metagegevens
Titel
A Therapeutic Recreation Camp for Children with Congenital Heart Disease: Examining Impact on the Psychosocial Well-Being of Parents
Auteurs
Lauren C. White
Fiona J. Moola
Joel A. Kirsh
Guy E. J. Faulkner
Publicatiedatum
25-06-2016
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 10/2016
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-016-0474-x

Andere artikelen Uitgave 10/2016

Journal of Child and Family Studies 10/2016 Naar de uitgave