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Journal of Autism and Developmental Disorders

Gepubliceerd in:

22-03-2021 | Original Paper

A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives

Auteurs: Marisa Petruccelli, Leah Ramella, Ana J. Schaefer, R. Christopher Sheldrick, Alice S. Carter, Abbey Eisenhower, Sarabeth Broder-Fingert, Thomas I. Mackie

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2022

Abstract

The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences.

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Titel: A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives
Auteurs: Marisa Petruccelli
Leah Ramella
Ana J. Schaefer
R. Christopher Sheldrick
Alice S. Carter
Abbey Eisenhower
Sarabeth Broder-Fingert
Thomas I. Mackie
Publicatiedatum: 22-03-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 2/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-04964-3

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