Skip to main content
Top
Gepubliceerd in: Quality of Life Research 4/2021

06-11-2020 | Review

A systematic review of self-care measures for adolescents with health needs

Auteurs: Xu Jiang, Kelsey Walker, Allyson K. Topps

Gepubliceerd in: Quality of Life Research | Uitgave 4/2021

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

The current study sought to review instruments measuring self-care for adolescents with health needs to provide a summary of the tools available for conducting self-care research in this population.

Method

Studies were mainly identified through searches in three electronic bibliographic databases (i.e., PsycINFO, CINAHL, and PubMed) and additional sources to retrieve relevant articles. Studies were included if they focused on self-care measures, included samples of adolescents (ages 10–19), were published in English peer-reviewed journals, dissertations, and from the years 1980 through 2020. The COnsensus-based Standards for the selection of health status Measurement Instruments (COSMIN) was used to assess the methodological quality of each study and evaluate the measurement quality based on available studies.

Results

A total of ten scales from 12 papers were identified to meet the search criteria and designed for adolescent patients with three types of health needs, including diabetes, cystic fibrosis, and others (female care and nutrition). There is a lack of a clear and comprehensive definition of self-care for different health needs. The dominant focus of the scales was the behavioral aspect of self-care (e.g., adherence to medication regimen), with only a few scales (e.g., female care) assessing the psychological aspect of self-care. The quality of the psychometric properties of the scales varied greatly.

Conclusions

Results highlighted the need for more research on developing and validating self-care measures for adolescents with health needs. The unique developmental characteristics of adolescents should be adequately considered, and the psychological aspect of self-care should be incorporated in measurement development.
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Literatuur
1.
go back to reference Wilkinson, A., & Whitehead, L. (2009). Evolution of the concept of self-care and implications for nurses: a literature review. International Journal of Nursing Studies, 46(8), 1143–1147.CrossRef Wilkinson, A., & Whitehead, L. (2009). Evolution of the concept of self-care and implications for nurses: a literature review. International Journal of Nursing Studies, 46(8), 1143–1147.CrossRef
2.
go back to reference Sidani, S. (2011). Self-care. In Doran D. M. (Ed.), Nursing outcomes: the state of the science (2nd ed.) (pp. 79–124). Sudbury: Jones & Bartlett Learning. Sidani, S. (2011). Self-care. In Doran D. M. (Ed.), Nursing outcomes: the state of the science (2nd ed.) (pp. 79–124). Sudbury: Jones & Bartlett Learning.
3.
go back to reference Lewin, A. B., La Greca, A. M., Geffken, G. R., Williams, R. B., Duke, D. C., Storch, E. A., & Silverstein, J. H. (2009). Validity and reliability of an adolescent and parent rating scale of type 1 diabetes adherence behaviors: the self-care inventory (SCI). Journal of Pediatric Psychology, 34, 999–1007.CrossRef Lewin, A. B., La Greca, A. M., Geffken, G. R., Williams, R. B., Duke, D. C., Storch, E. A., & Silverstein, J. H. (2009). Validity and reliability of an adolescent and parent rating scale of type 1 diabetes adherence behaviors: the self-care inventory (SCI). Journal of Pediatric Psychology, 34, 999–1007.CrossRef
4.
go back to reference Patton, S. R., Graham, J. L., Varlotta, L., & Holsclaw, D., Jr. (2003). Measuring self-care independence in children with cystic fibrosis: the self-care independence scale (SCIS). Pediatric Pulmonology, 36, 123–130.CrossRef Patton, S. R., Graham, J. L., Varlotta, L., & Holsclaw, D., Jr. (2003). Measuring self-care independence in children with cystic fibrosis: the self-care independence scale (SCIS). Pediatric Pulmonology, 36, 123–130.CrossRef
5.
go back to reference Galvan, A., Hare, T., Voss, H., Glover, G., & Casey, B. J. (2007). Risk-taking and the adolescent brain: who is at risk? Developmental Science, 10, F8–F14.CrossRef Galvan, A., Hare, T., Voss, H., Glover, G., & Casey, B. J. (2007). Risk-taking and the adolescent brain: who is at risk? Developmental Science, 10, F8–F14.CrossRef
6.
go back to reference Steinberg, L. (2007). Risk taking in adolescence: new perspectives from brain and behavioral science. Current Directions in Psychological Science, 16, 55–59.CrossRef Steinberg, L. (2007). Risk taking in adolescence: new perspectives from brain and behavioral science. Current Directions in Psychological Science, 16, 55–59.CrossRef
7.
go back to reference Caro-Bautista, J., Martín-Santos, F. J., & Morales-Asencio, J. M. (2014). Systematic review of the psychometric properties and theoretical grounding of instruments evaluating self-care in people with type 2 Diabetes Mellitus. Journal of Advanced Nursing, 70, 1209–1227.CrossRef Caro-Bautista, J., Martín-Santos, F. J., & Morales-Asencio, J. M. (2014). Systematic review of the psychometric properties and theoretical grounding of instruments evaluating self-care in people with type 2 Diabetes Mellitus. Journal of Advanced Nursing, 70, 1209–1227.CrossRef
8.
go back to reference Matarese, M., Lommi, M., & De Marinis, M. G. (2017). Systematic review of measurement properties of self-reported instruments for evaluating self-care in adults. Journal of Advanced Nursing, 73(6), 1272–1287.CrossRef Matarese, M., Lommi, M., & De Marinis, M. G. (2017). Systematic review of measurement properties of self-reported instruments for evaluating self-care in adults. Journal of Advanced Nursing, 73(6), 1272–1287.CrossRef
9.
go back to reference Urpí-Fernández, A., Zabaleta-Del-Olmo, E., Montes-Hidalgo, J., Tomás-Sábado, J., Roldán-Merino, J., & Lluch-Canut, M. (2017). Instruments to assess self-care among healthy children: a systematic review of measurement properties. Journal of Advanced Nursing, 73, 2832–2844.CrossRef Urpí-Fernández, A., Zabaleta-Del-Olmo, E., Montes-Hidalgo, J., Tomás-Sábado, J., Roldán-Merino, J., & Lluch-Canut, M. (2017). Instruments to assess self-care among healthy children: a systematic review of measurement properties. Journal of Advanced Nursing, 73, 2832–2844.CrossRef
12.
go back to reference Richard, A. A., & Shea, K. (2011). Delineation of self-care and associated concepts. Journal of Nursing Scholarship, 43(3), 255–264.PubMed Richard, A. A., & Shea, K. (2011). Delineation of self-care and associated concepts. Journal of Nursing Scholarship, 43(3), 255–264.PubMed
13.
go back to reference Orem, D. E. (1995). Nursing: concepts of practice (5th ed.). St. Louis: Mosby. Orem, D. E. (1995). Nursing: concepts of practice (5th ed.). St. Louis: Mosby.
14.
go back to reference Hanson, C. L., De Guire, M. J., Schinkel, A. M., Kolterman, O. G., Goodman, J. P., & Buckingham, B. A. (1996). Self-care behaviors in insulin-dependent diabetes: evaluative tools and their associations with glycemic control. Journal of Pediatric Psychology, 21, 467–482.CrossRef Hanson, C. L., De Guire, M. J., Schinkel, A. M., Kolterman, O. G., Goodman, J. P., & Buckingham, B. A. (1996). Self-care behaviors in insulin-dependent diabetes: evaluative tools and their associations with glycemic control. Journal of Pediatric Psychology, 21, 467–482.CrossRef
15.
go back to reference Sidani, S., & Doran, D. (2014). Development and validation of a self-care ability measure. Canadian Journal of Nursing Research, 46, 11–25.CrossRef Sidani, S., & Doran, D. (2014). Development and validation of a self-care ability measure. Canadian Journal of Nursing Research, 46, 11–25.CrossRef
16.
go back to reference Orem, D. E. (2001). Nursing: concepts of practice (6th ed.). St. Louis: Mosby. Orem, D. E. (2001). Nursing: concepts of practice (6th ed.). St. Louis: Mosby.
17.
go back to reference Steinberg, L., & Morris, A. S. (2001). Adolescent development. Annual Reviews Psychology, 52, 83–110.CrossRef Steinberg, L., & Morris, A. S. (2001). Adolescent development. Annual Reviews Psychology, 52, 83–110.CrossRef
18.
go back to reference Kann, L., McManus, T., Harris, W. A., Shanklin, S. L., Flint, K. H., Queen, B., & Lim, C. (2018). Youth risk behavior surveillance—United States, 2017. MMWR Surveillance Summaries, 67(8), 1.CrossRef Kann, L., McManus, T., Harris, W. A., Shanklin, S. L., Flint, K. H., Queen, B., & Lim, C. (2018). Youth risk behavior surveillance—United States, 2017. MMWR Surveillance Summaries, 67(8), 1.CrossRef
19.
go back to reference McCaleb, A., & Cull, V. V. (2000). Sociocultural influences and self-care practices of middle adolescents. Journal of Pediatric Nursing, 15, 30–35.CrossRef McCaleb, A., & Cull, V. V. (2000). Sociocultural influences and self-care practices of middle adolescents. Journal of Pediatric Nursing, 15, 30–35.CrossRef
20.
go back to reference Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Annals of Internal Medicine, 151, 264–269.CrossRef Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Annals of Internal Medicine, 151, 264–269.CrossRef
21.
go back to reference Irwin, C. E., Burg, S. J., & Cart, C. U. (2002). America’s adolescents: where have we been, where are we going? Journal of Adolescent Health, 31, 91–121.CrossRef Irwin, C. E., Burg, S. J., & Cart, C. U. (2002). America’s adolescents: where have we been, where are we going? Journal of Adolescent Health, 31, 91–121.CrossRef
22.
go back to reference Terwee, C. B., Mokkink, L. B., Knol, D. L., Ostelo, R. W., Bouter, L. M., & de Vet, H. C. (2012). Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist. Quality of Life Research, 21, 651–657.CrossRef Terwee, C. B., Mokkink, L. B., Knol, D. L., Ostelo, R. W., Bouter, L. M., & de Vet, H. C. (2012). Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist. Quality of Life Research, 21, 651–657.CrossRef
23.
go back to reference Mokkink, L. B., Terwee, C. B., Knol, D. L., Stratford, P. W., Alonso, J., Patrick, D. L., & De Vet, H. C. (2010). The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its content. BMC Medical Research Methodology, 10(1), 22.CrossRef Mokkink, L. B., Terwee, C. B., Knol, D. L., Stratford, P. W., Alonso, J., Patrick, D. L., & De Vet, H. C. (2010). The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: a clarification of its content. BMC Medical Research Methodology, 10(1), 22.CrossRef
24.
go back to reference Hawker, S., Payne, S., Kerr, C., Hardey, M., & Powell, J. (2002). Appraising the evidence: reviewing disparate data systematically. Qualitative Health Research, 12(9), 1284–1299.CrossRef Hawker, S., Payne, S., Kerr, C., Hardey, M., & Powell, J. (2002). Appraising the evidence: reviewing disparate data systematically. Qualitative Health Research, 12(9), 1284–1299.CrossRef
25.
go back to reference Hsieh, C.-H., Gau, M.-L., & G., Mao, H-C, & Li, C-Y. (2004). The development and psychometric testing of a self-care scale for dysmenorrhic adolescents. The Journal of Nursing Research, 12(2), 119–130.CrossRef Hsieh, C.-H., Gau, M.-L., & G., Mao, H-C, & Li, C-Y. (2004). The development and psychometric testing of a self-care scale for dysmenorrhic adolescents. The Journal of Nursing Research, 12(2), 119–130.CrossRef
26.
go back to reference Moore, J. B., Pawloski, L., Baghi, H., Whitt, K., Rodriguez, C., Lumbi, L., & Bashatah, A. (2005). Development and examination of psychometric properties of self-care instruments to measure nutrition practices for English and Spanish speaking adolescents. Self-Care, Dependent-Care, and Nursing: The Official Journal of the International Orem Society, 13,(1), 9–16. Moore, J. B., Pawloski, L., Baghi, H., Whitt, K., Rodriguez, C., Lumbi, L., & Bashatah, A. (2005). Development and examination of psychometric properties of self-care instruments to measure nutrition practices for English and Spanish speaking adolescents. Self-Care, Dependent-Care, and Nursing: The Official Journal of the International Orem Society, 13,(1), 9–16.
27.
go back to reference Pierce, J. S., Jordan, S. S., & Arnau, R. C. (2018). Development and validation of the pediatric diabetes routines questionnaire for adolescents. Journal of Clinical Psychology in Medical Settings, 26, 47–58.CrossRef Pierce, J. S., Jordan, S. S., & Arnau, R. C. (2018). Development and validation of the pediatric diabetes routines questionnaire for adolescents. Journal of Clinical Psychology in Medical Settings, 26, 47–58.CrossRef
28.
go back to reference Nakamura, N., Yakushijin, Y., Kanamaru, T., Tani, H., Ideno, K., & Nakai, A. (2019). Development and validity testing of the revised diabetes self-care inventory for children and adolescents. Diabetology International, 10, 117–125.CrossRef Nakamura, N., Yakushijin, Y., Kanamaru, T., Tani, H., Ideno, K., & Nakai, A. (2019). Development and validity testing of the revised diabetes self-care inventory for children and adolescents. Diabetology International, 10, 117–125.CrossRef
30.
go back to reference Wong, C. L., Ip, W. Y., Choi, K. C., & Lam, L. W. (2015). Examining self-care behaviors and their associated factors among adolescent girls with dysmenorrhea: an application of Orem’s self-care deficit nursing theory. Journal of Nursing Scholarship, 47(3), 219–227.CrossRef Wong, C. L., Ip, W. Y., Choi, K. C., & Lam, L. W. (2015). Examining self-care behaviors and their associated factors among adolescent girls with dysmenorrhea: an application of Orem’s self-care deficit nursing theory. Journal of Nursing Scholarship, 47(3), 219–227.CrossRef
31.
go back to reference Streiner, D. L., & Kottner, J. (2014). Recommendations for reporting the results of studies of instrument and scale development and testing. Journal of Advanced Nursing, 70, 1970–1979.CrossRef Streiner, D. L., & Kottner, J. (2014). Recommendations for reporting the results of studies of instrument and scale development and testing. Journal of Advanced Nursing, 70, 1970–1979.CrossRef
32.
go back to reference Orem, D. E. (1991). Nursing: Concepts of Practice (4th ed.). St Louis: Mosby. Orem, D. E. (1991). Nursing: Concepts of Practice (4th ed.). St Louis: Mosby.
33.
go back to reference Dubois, C. A., D’Amour, D., Pomey, M. P., Girard, F., & Brault, I. (2013). Conceptualizing performance of nursing care as a prerequisite for better measurement: a systematic and interpretive review. BMC Nursing, 12, 7.CrossRef Dubois, C. A., D’Amour, D., Pomey, M. P., Girard, F., & Brault, I. (2013). Conceptualizing performance of nursing care as a prerequisite for better measurement: a systematic and interpretive review. BMC Nursing, 12, 7.CrossRef
34.
go back to reference Kennedy, M. A., & Hannah, K. (2007). Representing nursing practice: evaluating the effectiveness of a nursing classification system. Canadian Journal of Nursing Research, 39, 58–79. Kennedy, M. A., & Hannah, K. (2007). Representing nursing practice: evaluating the effectiveness of a nursing classification system. Canadian Journal of Nursing Research, 39, 58–79.
35.
go back to reference Saucier, C. P. (1984). Self concept and self-care management in school-age children with diabetes. Pediatric Nursing, 10(2), 135–138.PubMed Saucier, C. P. (1984). Self concept and self-care management in school-age children with diabetes. Pediatric Nursing, 10(2), 135–138.PubMed
36.
go back to reference Lancaster, B. M. (2006). Examination of the impact of age, family conflict, and perceived parental involvement on treatment adherence for children and adolescents with cystic fibrosis and diabetes. Dissertation (publication No.3243319). [Doctoral dissertation, Western Michigan University] ProQuest Dissertations Publishing. Lancaster, B. M. (2006). Examination of the impact of age, family conflict, and perceived parental involvement on treatment adherence for children and adolescents with cystic fibrosis and diabetes. Dissertation (publication No.3243319). [Doctoral dissertation, Western Michigan University] ProQuest Dissertations Publishing.
37.
go back to reference Wong, C. L., Ip, W. Y., & Shiu, T. Y. (2012). Translation and validation of the Chinese-Cantonese version of the Exercise of Self-Care Agency Scale. International Journal of Nursing Studies, 49(9), 1122–1137.CrossRef Wong, C. L., Ip, W. Y., & Shiu, T. Y. (2012). Translation and validation of the Chinese-Cantonese version of the Exercise of Self-Care Agency Scale. International Journal of Nursing Studies, 49(9), 1122–1137.CrossRef
Metagegevens
Titel
A systematic review of self-care measures for adolescents with health needs
Auteurs
Xu Jiang
Kelsey Walker
Allyson K. Topps
Publicatiedatum
06-11-2020
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 4/2021
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-020-02685-1

Andere artikelen Uitgave 4/2021

Quality of Life Research 4/2021 Naar de uitgave