Top

Clinical Child and Family Psychology Review

Gepubliceerd in:

28-06-2021

A Systematic Review of Parenting Interventions to Support Siblings of Children with a Chronic Health Condition

Auteurs: Amy E. Mitchell, Alina Morawska, Raine Vickers-Jones, Kathryn Bruce

Gepubliceerd in: Clinical Child and Family Psychology Review | Uitgave 3/2021

Abstract

This systematic review summarises the parenting intervention literature for parents of children who have a sibling with a chronic health condition, and evaluates intervention efficacy for improving parent (parenting skills, parenting efficacy) and child (emotional and behavioural adjustment, condition knowledge, quality of life) outcomes. Electronic databases were searched to identify relevant papers published in English from inception until May 2020. Reference lists of eligible papers were further searched for relevant articles. Six papers (two controlled trials, four uncontrolled trials) evaluating four separate intervention programs met inclusion criteria. All included parent- and child-focused intervention components. Results showed an overall trend for pre- to post-intervention improvement in children’s behavioural and emotional adjustment and health condition knowledge. Few studies examined effects on parent outcomes, and there was no evidence of change on these measures. Overall, results suggest that parenting interventions may help to improve siblings’ emotional and behavioural adjustment and condition knowledge; however, all of the interventions combined parent- and child-directed intervention components, making it difficult to determine which intervention elements drive change. Further research is needed to test mechanisms by which parenting interventions may improve outcomes for siblings of children with chronic health conditions, and to establish the efficacy of this approach.

vorige artikel Social Media and Psychological Well-Being Among Youth: The Multidimensional Model of Social Media Use

Barlow, J., Harrison, K., & Shaw, K. (1998). The experience of parenting in the context of juvenile chronic arthritis. Clinical Child Psychology and Psychiatry, 3(3), 445–463. https://doi.org/10.1177/1359104598033008CrossRef

Bellin, M. H., & Kovacs, P. J. (2006). Fostering resilience in siblings of youths with a chronic health condition: A review of the literature. Health & Social Work, 31(3), 209–216. https://doi.org/10.1093/hsw/31.3.209CrossRef

Brown, R. T., Wiener, L., Kupst, M. J., Brennan, T., Behman, R., Compas, B. E., Elkin, T. D., Fairclough, D. L., Friebert, S., Katz, E., Kazak, A. E., Madan-Swain, A., Mansfield, N., Mullins, L. L., Noll, R., Farkas Patenaude, A., Phipps, S., Sahler, O. J., Sourkes, B., & Zelter, L. (2008). Single parents of children with chronic illness: An understudied phenomenon. Journal of Pediatic Psychology, 33(4), 408–421. https://doi.org/10.1093/jpepsy/jsm079CrossRef

Coffey, J. S. (2006). Parenting a child with chronic illness: A metasynthesis. Pediatric Nursing, 32(1), 51–59.PubMed

Cohen, M. S. (1999). Families coping with chronic childhood illness: A research review. Families, Systems and Health, 17(2), 149–164. https://doi.org/10.1037/h0089879CrossRef

Dauz Williams, P., Ridder, E. L., Setter, R. K., Liebergen, A., Curry, H., Piamjariyakul, U., & Williams, A. R. (2009). Pediatric chronic illness (cancer, cystic fibrosis) effects on well siblings: Parents’ voices. Issues in Comprehensive Pediatric Nursing, 32(2), 94–113. https://doi.org/10.1080/01460860902740990CrossRef

Feeman, D. J., & Hagen, J. W. (1990). Effects of childhood chronic illness on families. Social Work in Health Care, 14(3), 37–53. https://doi.org/10.1300/J010v14n03_03CrossRefPubMed

Gan, L. L., Lum, A., Wakefield, C. E., Nandakumar, B., & Fardell, J. E. (2017). School experiences of siblings of children with chronic illness: A systematic review of the literature. Journal of Pediatric Nursing, 33, 23–32. https://doi.org/10.1016/j.pedn.2016.11.007CrossRefPubMed

Giallo, R., & Gavidia-Payne, S. (2008). Evaluation of a family-based intervention for siblings of children with a disability or chronic illness. Australian e-Journal for the Advancement of Mental Health, 7(2), 84–96. https://doi.org/10.5172/jamh.7.2.84CrossRef

Graff, J. C. (2001). An evaluation of a modified intervention for siblings of children with chronic illness/disability [Dissertation, University of Kansas]. Retrieved from ProQuest, document ID 304697351

Hartling, L., Milne, A., Tjosvold, L., Wrightson, D., Gallivan, J., & Newton, A. S. (2014). A systematic review of interventions to support siblings of children with chronic illness or disability. Journal of Paediatrics and Child Health, 50(10), E26–E38. https://doi.org/10.1111/j.1440-1754.2010.01771.xCrossRefPubMed

Haukeland, Y. B., Czajkowski, N. O., Fjermestad, K. W., Silverman, W. K., Mossige, S., & Vatne, T. M. (2020). Evaluation of “SIBS”, an intervention for siblings and parents of children with chronic disorders. Journal of Child and Family Studies, 29, 2201–2217. https://doi.org/10.1007/s10826-020-01737-xCrossRef

Higgins, J. P. T, & Altman, D. G. (2008). Chapter 8: Assessing risk of bias in included studies, In J. P. T Higgins & S. Green (Eds.), Cochrane Handbook for Systematic Reviews of Interventions: Cochrane Book Series. https://doi.org/10.1002/9780470712184.ch8

Hollidge, C. (2001). Psychological adjustment of siblings to a child with diabetes. Health & Social Work, 26(1), 15–25. https://doi.org/10.1093/hsw/26.1.15CrossRef

Kiburz, J. A. (1994). Perceptions and concerns of the school-age silbings of children with myelomeningocele. Issues in Comprehensive Pediatric Nursing, 17(4), 223–231. https://doi.org/10.3109/01460869409078307CrossRefPubMed

Knecht, C., Hellmers, C., & Metzing, S. (2015). The perspective of siblings of children with chronic illness: A literature review. Journal of Pediatric Nursing, 30, 102–116. https://doi.org/10.1016/j.pedn.2014.10.010CrossRefPubMed

Limbers, C. A., & Skipper, S. (2014). Health-related quality of life measurement in siblings of children with physical chronic illness: A systematic review. Families, Systems and Health, 32(4), 408–415. https://doi.org/10.1037/fsh0000077CrossRefPubMed

Lobato, D. J., & Kao, B. T. (2002). Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability. Journal of Pediatric Psychology, 27(8), 711–716. https://doi.org/10.1093/jpepsy/27.8.711CrossRefPubMed

Lobato, D. J., & Kao, B. T. (2005). Brief report: Family-based group intervention for young siblings of children with chronic illness and developmental disability. Journal of Pediatric Psychology, 30(8), 678–682. https://doi.org/10.1093/jpepsy/jsi054CrossRefPubMed

Lundahl, B., Risser, H. J., & Lovejoy, M. C. (2006). A meta-analysis of parent training: Moderators and follow-up effects. Clinical Psychology Review, 26, 86–104. https://doi.org/10.1016/j.cpr.2005.07.004CrossRefPubMed

Mitchell, A. E., Morawska, A., & Mihelic, M. (2020). A systematic review of parenting interventions for child chronic health conditions. Journal of Child Health Care, 24(4), 603–628. https://doi.org/10.1177/1367493519882850CrossRefPubMed

Morawska, A., Calam, R., & Fraser, J. (2015). Parenting interventions for childhood chronic illness: A review and recommendations for intervention design and delivery. Journal of Child Health Care, 19(1), 5–17. https://doi.org/10.1177/1367493513496664CrossRefPubMed

Perrin, E. C., Ayoub, C. C., & Willett, J. B. (1993). In the eyes of the beholder: Family and maternal influences on perceptions of adjustment in children with a chronic illness. Journal of Developmental and Behavioral Pediatrics, 14(2), 94–105. https://doi.org/10.1097/00004703-199304000-00004CrossRefPubMed

Perrin, J. M., Anderson, L. E., & Van Cleave, J. (2014). The rise in chronic conditions among infants, children, and youth can be met with continued health system innovations. Health Affairs, 33(12), 2099–2105. https://doi.org/10.1377/hlthaff.2014.0832CrossRefPubMed

Pinquart, M. (2013). Do the parent-child relationship and parenting behaviours differ between families with a child wiht and without chronic illness? A Meta-Analysis. Journal of Pediatric Psychology, 38(7), 708–721. https://doi.org/10.1093/jpepsy/jst020CrossRefPubMed

Pinquart, M. (2018). Parenting stress in caregivers of children with chronic phyical condition - A meta-analysis. Stress and Health, 34, 197–207. https://doi.org/10.1002/smi.2780CrossRefPubMed

Pinquart, M., & Shen, Y. (2011). Behavior problems in children and adolescents with chronic physical illness: A meta-analysis. Journal of Pediatric Psychology, 36(9), 1003–1016. https://doi.org/10.1093/jpepsy/jsr042CrossRefPubMed

Rodrigues, N., & Patterson, J. M. (2007). Impact of severity of a child’s chronic condition on the functioning of two-parent families. Journal of Pediatic Psychology, 32(4), 417–426. https://doi.org/10.1093/jpepsy/jsl031CrossRef

Schunemann, H., Brozek, J., Guyatt, G., & Oxman, A. (2013). GRADE handbook for grading quality of evidence and strength of recommendations. Updated October 2013. The GRADE Working Group, 2013. https://www.guidelinedevelopment.org/handbook

Sharpe, D., & Rossiter, L. (2002). Siblings of children with a chronic illness: A meta-analysis. Journal of Pediatic Psychology, 27(8), 699–710. https://doi.org/10.1093/jpepsy/27.8.699CrossRef

Stein, R. E. K., & Jones Jessop, D. (1982). A noncategorical approach to chronic childhood illness. Public Health Reports, 97(4), 354–362.PubMedPubMedCentral

Strohm, K. (2001). Sibling project. Youth Studies Australia, 20(4), 48–52.

Timko, C., Stovel, K. W., & Moos, R. H. (1992). Functioning among mothers and fathers of children with juvenile rheumatic disease: A longitudinal study. Journal of Pediatic Psychology, 17(6), 705–724. https://doi.org/10.1093/jpepsy/17.6.705CrossRef

Tritt, S. G., & Esses, L. M. (1988). Psychosocial adaptation of siblings of children with chronic medical illnesses. The American Journal of Orthopsychiatry, 58(2), 211–220. https://doi.org/10.1111/j.1939-0025.1988.tb01582.xCrossRefPubMed

Vermaes, I. P. R., van Susante, A. M. J., & van Bakel, H. J. A. (2012). Psychological functioning of siblings in families of children with chronic health conditions: A meta-analysis. Journal of Pediatic Psychology, 37(2), 166–184. https://doi.org/10.1093/jpepsy/jsr081CrossRef

Williams, P. D., Hanson, S., Karlin, R., Ridder, L., Liebergen, A., Olson, J., Barnard, M. U., & Tobin-Rommelhart, S. (1997). Outcomes of a nursing intervention for siblings of chronically ill children: A pilot study. Journal of Pediatric Nursing, 2(3), 127–137. https://doi.org/10.1111/j.1744-6155.1997.tb00070.xCrossRef

Williams, P. D., Williams, A. R., Graff, J. C., Hanson, S., Stanton, A., Hafeman, C., Liebergen, A., Leuenberg, K., Setter, R. K., Ridder, L., Curry, H., Barnard, M., & Sanders, S. (2003). A community-based intervention for siblings and parents of children with chronic illness or disability: The ISEE Study. Journal of Pediatrics, 143(3), 386–393. https://doi.org/10.1067/s0022-3476(03)00391-3CrossRef

Wood, L. J., Sherman, E., Hamiwka, L. D., Blackman, M., & Wirrell, E. (2008). Depression, anxiety, and quality of life in siblings of children with intractable epilepsy. Epilepsy and Behavior, 13(1), 144–148. https://doi.org/10.1016/j.yebeh.2008.03.012CrossRefPubMed

Wu, Y. P., Follansbee-Junger, K., Rausch, J., & Modi, A. (2014). Parent and family stress factors predict health-related quality in pediatric patients with new-onset epilepsy. Epilepsia, 55(6), 866–877. https://doi.org/10.1111/epi.12586CrossRefPubMedPubMedCentral

Titel: A Systematic Review of Parenting Interventions to Support Siblings of Children with a Chronic Health Condition
Auteurs: Amy E. Mitchell
Alina Morawska
Raine Vickers-Jones
Kathryn Bruce
Publicatiedatum: 28-06-2021
Uitgeverij: Springer US
Gepubliceerd in: Clinical Child and Family Psychology Review / Uitgave 3/2021
Print ISSN: 1096-4037
Elektronisch ISSN: 1573-2827
DOI: https://doi.org/10.1007/s10567-021-00357-1

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 3/2021

Exploring Perinatal Indicators of Infant Social-Emotional Development: A Review of the Replicated Evidence

Social Media and Psychological Well-Being Among Youth: The Multidimensional Model of Social Media Use

Increasing Effectiveness of Cognitive Behavioral Therapy for Conduct Problems in Children and Adolescents: What Can We Learn from Neuroimaging Studies?

Effective Components of School-Based Prevention Programs for Child Abuse: A Meta-Analytic Review

Fathers’ Experience of Perinatal Obsessive–Compulsive Symptoms: A Systematic Literature Review

Telehealth and Autism Prior to and in the Age of COVID-19: A Systematic and Critical Review of the Last Decade