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Journal of Autism and Developmental Disorders

Gepubliceerd in:

21-02-2019 | Commentary

A Systematic Network of Autism Primary Care Services (SYNAPSE): A Model of Coproduction for the Management of Autism Spectrum Disorder

Auteurs: Xuejun Kong, Jun Liu, Tiffany Chien, Maren Batalden, David A. Hirsh

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2020

Abstract

The prevalence of Autism Spectrum Disorder (ASD) is growing rapidly, affecting 1 in 59 children in the United States in 2018. Individuals with ASD currently receive fragmented care that threatens their health and well-being. Challenges of autism care include disconnections between the medical system and school supports, poor care coordination between primary care and specialists, and saturation of neuropsychiatry-based centers’ capacity to care for the ASD population. ASD treatment also lacks of a coordinated system of care for patients’ multi-system comorbidities. Families are calling for an ASD care delivery system to meet their needs and the needs of their children. To serve people with ASD and their medical and other providers, we propose a coordinated approach to care grounded in primary care. We call the model the “Systematic Network of Autism Primary Care Services (SYNAPSE).” We develop the model by applying the frameworks of “coproduction” of care and chronic disease management. In this Commentary we discuss the model’s rationale, underpinnings, and the implications for clinical practice. We advance these ideas to align with policy makers’ recognition of the importance of primary care for ASD, as reflected by the most recent Interagency Autism Coordinating Committee (IACC) meeting at the National Institute of Mental Health.

vorige artikel Brief Report: Participation of Black and African-American Families in Autism Research

volgende artikel Correction to: Effectiveness of a SCERTS Model-Based Intervention for Children with Autism Spectrum Disorder (ASD) in Hong Kong: A Pilot Study

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Titel: A Systematic Network of Autism Primary Care Services (SYNAPSE): A Model of Coproduction for the Management of Autism Spectrum Disorder
Auteurs: Xuejun Kong
Jun Liu
Tiffany Chien
Maren Batalden
David A. Hirsh
Publicatiedatum: 21-02-2019
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 5/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-019-03922-4

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