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21-02-2019 | Commentary

A Systematic Network of Autism Primary Care Services (SYNAPSE): A Model of Coproduction for the Management of Autism Spectrum Disorder

Auteurs: Xuejun Kong, Jun Liu, Tiffany Chien, Maren Batalden, David A. Hirsh

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2020

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Abstract

The prevalence of Autism Spectrum Disorder (ASD) is growing rapidly, affecting 1 in 59 children in the United States in 2018. Individuals with ASD currently receive fragmented care that threatens their health and well-being. Challenges of autism care include disconnections between the medical system and school supports, poor care coordination between primary care and specialists, and saturation of neuropsychiatry-based centers’ capacity to care for the ASD population. ASD treatment also lacks of a coordinated system of care for patients’ multi-system comorbidities. Families are calling for an ASD care delivery system to meet their needs and the needs of their children. To serve people with ASD and their medical and other providers, we propose a coordinated approach to care grounded in primary care. We call the model the “Systematic Network of Autism Primary Care Services (SYNAPSE).” We develop the model by applying the frameworks of “coproduction” of care and chronic disease management. In this Commentary we discuss the model’s rationale, underpinnings, and the implications for clinical practice. We advance these ideas to align with policy makers’ recognition of the importance of primary care for ASD, as reflected by the most recent Interagency Autism Coordinating Committee (IACC) meeting at the National Institute of Mental Health.
Literatuur
go back to reference Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007). Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs: National Survey of Children’s Health. Archives of Pediatrics & Adolescent Medicine, 161(4), 399–405. https://doi.org/10.1001/archpedi.161.4.399.CrossRef Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007). Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs: National Survey of Children’s Health. Archives of Pediatrics & Adolescent Medicine, 161(4), 399–405. https://​doi.​org/​10.​1001/​archpedi.​161.​4.​399.CrossRef
go back to reference Chandrasekhar, T., & Sikich, L. (2015). Challenges in the diagnosis and treatment of depression in autism spectrum disorders across the lifespan. Dialogues in Clinical Neuroscience, 17(2), 1–9. Chandrasekhar, T., & Sikich, L. (2015). Challenges in the diagnosis and treatment of depression in autism spectrum disorders across the lifespan. Dialogues in Clinical Neuroscience, 17(2), 1–9.
go back to reference Coordination, O. O. A. R. (2018b). Oral public comments for the 2018 IACC Health Workshop (pp. 1–12). Coordination, O. O. A. R. (2018b). Oral public comments for the 2018 IACC Health Workshop (pp. 1–12).
go back to reference Hoefman, R., Payakachat, N., van Exel, J., Kuhlthau, K., Kovacs, E., Pyne, J., & Tilford, J. M. (2014). Caring for a child with autism spectrum disorder and parents’ quality of life: Application of the CarerQol. Journal of Autism and Developmental Disorders, 44(8), 1933–1945.PubMedPubMedCentral Hoefman, R., Payakachat, N., van Exel, J., Kuhlthau, K., Kovacs, E., Pyne, J., & Tilford, J. M. (2014). Caring for a child with autism spectrum disorder and parents’ quality of life: Application of the CarerQol. Journal of Autism and Developmental Disorders, 44(8), 1933–1945.PubMedPubMedCentral
go back to reference IACC, & Coordination, N. O. O. A. R. (2018). 2016–2017 IACC strategic plan for autism spectrum disorder (pp. 1–196). IACC, & Coordination, N. O. O. A. R. (2018). 2016–2017 IACC strategic plan for autism spectrum disorder (pp. 1–196).
go back to reference Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Boisclair, W. C., Ashkenazy, E., & Baggs, A. (2013). Comparison of healthcare experiences in autistic and non-autistic adults: A cross-sectional online survey facilitated by an academic-community partnership. Journal of General Internal Medicine, 28(6), 761–769. https://doi.org/10.1007/s11606-012-2262-7.CrossRefPubMed Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Boisclair, W. C., Ashkenazy, E., & Baggs, A. (2013). Comparison of healthcare experiences in autistic and non-autistic adults: A cross-sectional online survey facilitated by an academic-community partnership. Journal of General Internal Medicine, 28(6), 761–769. https://​doi.​org/​10.​1007/​s11606-012-2262-7.CrossRefPubMed
go back to reference Snow, L. M., Gans, A., Sedillo, M., Zurlo, D., & Buffaloe, J. (2016). June 2016 New Mexico Hepatitis C Coalition (pp. 1–40). Snow, L. M., Gans, A., Sedillo, M., Zurlo, D., & Buffaloe, J. (2016). June 2016 New Mexico Hepatitis C Coalition (pp. 1–40).
go back to reference Soares, N., Baum, R., & Patel, D. (2017). Developmental-behavioral pediatrics education in the United States: Challenges in the midst of healthcare evolution. International Journal of Medical Education, 8, 396–399.CrossRef Soares, N., Baum, R., & Patel, D. (2017). Developmental-behavioral pediatrics education in the United States: Challenges in the midst of healthcare evolution. International Journal of Medical Education, 8, 396–399.CrossRef
go back to reference Waisman Center, University of Wisconsin-Madison. (2008). Medical home services for autism spectrum disorders, (pp. 1–48). Madison: Waisman Center, University of Wisconsin-Madison Waisman Center, University of Wisconsin-Madison. (2008). Medical home services for autism spectrum disorders, (pp. 1–48). Madison: Waisman Center, University of Wisconsin-Madison
Metagegevens
Titel
A Systematic Network of Autism Primary Care Services (SYNAPSE): A Model of Coproduction for the Management of Autism Spectrum Disorder
Auteurs
Xuejun Kong
Jun Liu
Tiffany Chien
Maren Batalden
David A. Hirsh
Publicatiedatum
21-02-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 5/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-019-03922-4

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