Swipe om te navigeren naar een ander artikel
For parents of children with an Autism spectrum disorder (ASD), high quality, easily accessible information and a strong peer network can be the key to raising a happy, healthy child, and maintaining family well-being and emotional resilience. This article reports the findings of an anonymous survey examining the information source preferences for 935 parents of individuals with ASDs in North Carolina. Data indicates that parents show similar information seeking patterns across the age spectrum, that availability of information (as indicated by overall information source selection) decrease as children age. It also shows that parents rely heavily on local sources of information, preferring them to nonlocal sources (such as the internet) for many types of information.
Log in om toegang te krijgen
Met onderstaand(e) abonnement(en) heeft u direct toegang:
Akin, L., & MacKinney, D. (2004). Autism, literacy, and libraries: The 3 Rs = Routine, repetition, and redundancy. Children & Libraries, 2(2), 35–43.
Braveman, P., & Gruskin, S. (2003). Defining equity in health. Journal of Epidemiology and Community Health, 57(4), 254–258. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/12646539.
Centers for Disease Control and Prevention (CDC). (2014). Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report. Surveillance Summaries, 63(2), 1–21. Retrieved from http://www.ncbi.nlm.nih.gov/pubmed/24670961.
Charmaz, K. (2014). Constructing grounded theory (2nd ed.). London: Sage.
Gibson, A. N. (2014). A better place? Factors in community assessment for parents of children with Down syndrome. Proceedings of the American Society for Information Science and Technology, 51(1), 1–10. CrossRef
Gibson, A. N. (2016). Building a progressive-situational model of post-diagnosis information seeking for parents of individuals with down syndrome. Global Qualitative Nursing Research, 3, 2333393616680967. doi: 10.1177/2333393616680967.
Grant, N., Rodger, S., & Hoffmann, T. (2016). Intervention decision-making processes and information preferences of parents of children with autism spectrum disorders. Child, 42(1), 125–134.
Halvorson, H. (2006). Asperger’s syndrome: How the public library can address these special needs. Children and Libraries, 4(3), 19–27.
King, G. A., Zwaigenbaum, L., King, S., Baxter, D., Rosenbaum, P., & Bates, A. (2006). A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome. Child, 32(3), 353–369. doi: 10.1111/j.1365-2214.2006.00571.x.
Mackintosh, V. H., Myers, B. J., & Goin-Kochel, R. P. (2005). Sources of information and support used by parents of children with autism spectrum disorders. Journal on Developmental Disabilities, 12(1), 41–51. Retrieved from http://www.oadd.org/publications/journal/issues/vol12no1/download/mackintoshEtAl.pdf.
Mandell, D. S., Listerud, J., Levy, S. E., & Pinto-Martin, J. A. (2002). Race differences in the age at diagnosis among Medicaid-eligible children with autism. Journal of the American Academy of Child & Adolescent Psychiatry, 41(12), 1447–1453. CrossRef
Mandell, D. S., Wiggins, L. D., Carpenter, L. A., Daniels, J., DiGuiseppi, C., Durkin, M. S., ... & Shattuck, P. T. (2009). Racial/ethnic disparities in the identification of children with autism spectrum disorders. American Journal of Public Health, 99(3), 493–498. doi: 10.2105/AJPH.2007.131243. CrossRefPubMedPubMedCentral
Nazneen, N., Rozga, A., Smith, C. J., Oberleitner, R., Abowd, G. D., & Arriaga, R. I. (2015). A novel system for supporting autism diagnosis using home videos: Iterative development and evaluation of system design. JMIR mHealth and uHealth, 3(2), e68. doi: 10.2196/mhealth.4393. CrossRefPubMedPubMedCentral
Ouellette-Kuntz, H. M., Coo, H., Lam, M., Yu, C. T., Breitenbach, M. M., Hennessey, P. E., ... & Crews, L. R. (2009). Age at diagnosis of autism spectrum disorders in four regions of Canada. Canadian Journal of Public Health, 100(4), 268–273. http://www.jstor.org/stable/41995266.
Sonnenwald, D. H., Wildemuth, B. M., & Harmon, G. L. (2001). A research method using the concept of information horizons. An example from a study of lower socio-economic students' information seeking behavior. The New Review of Information Behaviour, 2, 65–86.
UNC School of Medicine. (2016). About University of North Carolina TEACCH Autism Program. Retrieved from https://www.teacch.com/about-us.
Winson, G., & Adams, C. (2010). Collaboration at its best: Library and autism programs combine to serve special audience. Children & Libraries, 8(2), 15–17.
Woodman, A. C., Smith, L. E., Greenberg, J. S., & Mailick, M. R. (2016). Contextual factors predict patterns of change in functioning over 10 years among adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 46(1), 176–189. doi: 10.1007/s10803-015-2561-z. CrossRefPubMedPubMedCentral
- A Survey of Information Source Preferences of Parents of Individuals with Autism Spectrum Disorder
Amelia N. Gibson
- Springer US