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Quality of Life Research

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22-03-2018 | Review

A review of preference-based measures for the assessment of quality of life in children and adolescents with cerebral palsy

Auteurs: Christine Mpundu-Kaambwa, Gang Chen, Elisabeth Huynh, Remo Russo, Julie Ratcliffe

Gepubliceerd in: Quality of Life Research | Uitgave 7/2018

Abstract

Purpose

To examine the psychometric properties and suitability for use within the context of cerebral palsy research in children and adolescents of generic preference-based outcome measures (PROMs).

Methods

Nine electronic databases were searched in this systematic review. The consensus-based standards for the selection of health measurement instruments (COSMIN) checklist were used to measure the psychometric properties of the PROMs. A meta-analysis was used to pool correlation coefficients for convergent validity using the Schmidt–Hunter method. Heterogeneity was assessed using the I-squared statistic (I²).

Results

Four preference-based PROMs were identified from eight studies: Health Utilities Index—Mark 2 and 3 (HUI-2 and HUI-3, respectively), the Assessment Quality of Life-4 dimension (AQoL-4D) and the EuroQol-5 dimension 3 level (EQ-5D-3L). Only the HUI system was primarily developed for application with children/adolescents though health-state values for scoring the PROM were elicited from adults. The HUI-3 covered the most relevant constructs though it excludes important modules of health-related quality of life (HRQOL) such as activity limitations and participation restrictions. In terms of psychometric properties, evidence was presented for only five of COSMIN measurement properties: reliability (HUI3), measurement error (HUI-3), content validity (HUI-2 and HUI-3), Hypotheses testing (HUI-3 and AQoL-4D) and criterion validity (HUI-3). No papers reported on internal consistency, structural validity, cross-cultural validity or responsiveness of the preference-based measures in children and adolescents with cerebral palsy.

Conclusions

This review highlights the dearth in studies using preference-based PROMs to measure HRQOL associated with cerebral palsy in children and adolescents. The HUI-3 demonstrated the strongest psychometric properties, though it does not cover all dimensions relevant to this population.

vorige artikel Preference-based measures to obtain health state utility values for use in economic evaluations with child-based populations: a review and UK-based focus group assessment of patient and parent choices

volgende artikel Do country-specific preference weights matter in the choice of mapping algorithms? The case of mapping the Diabetes-39 onto eight country-specific EQ-5D-5L value sets

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Titel: A review of preference-based measures for the assessment of quality of life in children and adolescents with cerebral palsy
Auteurs: Christine Mpundu-Kaambwa
Gang Chen
Elisabeth Huynh
Remo Russo
Julie Ratcliffe
Publicatiedatum: 22-03-2018
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 7/2018
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-018-1837-0

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Andere artikelen Uitgave 7/2018

Health state utility values of high prevalence mental disorders in Australia: results from the National Survey of Mental Health and Wellbeing

People in states worse than dead according to the EQ-5D UK value set: would they rather be dead?

Agreement between retrospectively and contemporaneously collected patient-reported outcome measures (PROMs) in hip and knee replacement patients

Evaluation of options for presenting health-states from PROMIS® item banks for valuation exercises

Coping mediates the relationship between sense of coherence and mental quality of life in patients with chronic illness: a cross-sectional study

Application of validity theory and methodology to patient-reported outcome measures (PROMs): building an argument for validity