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Quality of Life Research
Gepubliceerd in: Quality of Life Research 3/2014

01-04-2014 | Review

A review of patient-reported outcomes for children and adolescents with obesity

Auteurs: Bani Ahuja, Anne F. Klassen, Randi Satz, Nikita Malhotra, Elena Tsangaris, Matthew Ventresca, Nora Fayed

Gepubliceerd in: Quality of Life Research | Uitgave 3/2014

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Abstract

Introduction

Obesity is a chronic condition that can impact the physical, emotional, mental and social elements that encompass a child’s life. The objectives of this study were to identify which generic and obesity-specific patient-reported outcome (PRO) instruments are used in obesity literature, as well as review their conceptual approach, health and health-related content, ethical content and psychometric properties.

Method

PubMed, CINAHL, EMBASE and PsycINFO were searched from the inception of each database to May 2012 to identify all studies using multi-dimensional PRO instruments with children who are overweight or obese. The most common generic and all obesity-specific instruments were analyzed according to the study objectives.

Results

From 4,226 articles identified by our search, 70 articles used 6 generic and 4 obesity-specific PRO instruments. While the most commonly used PRO instrument was the generic PedsQL 4.0 (used in 53 studies), many health domains were found in the obesity-specific instruments that are not measured by the PedsQL 4.0. Summary of the development and psychometric properties of the generic and obesity PROs identified that no one instrument meets all the guideline criteria for instrument development and validation, e.g., only one instrument included qualitative input from children with obesity in the content development phase.

Discussion

This comprehensive review provides information to aid in selecting multi-dimensional PRO instruments in children with obesity according to various aspects of content as well as psychometric properties. The conceptual analysis shows that the reviewed PRO instruments contain inconsistencies in their conceptual approaches. Also, certain relevant health domains to children and youth with obesity were not included in the most commonly used generic instrument. The obesity-specific instruments require further validation before they can be used in intervention studies.
vorige artikel Patient-important activity and participation outcomes in clinical trials involving children with chronic conditions
volgende artikel Considering quality of life for children with cancer: a systematic review of patient-reported outcome measures and the development of a conceptual model
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Metagegevens
Titel
A review of patient-reported outcomes for children and adolescents with obesity
Auteurs
Bani Ahuja
Anne F. Klassen
Randi Satz
Nikita Malhotra
Elena Tsangaris
Matthew Ventresca
Nora Fayed
Publicatiedatum
01-04-2014
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 3/2014
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0459-9

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