Skip to main content
Top
Gepubliceerd in: Journal of Autism and Developmental Disorders 6/2017

03-04-2017 | Original Paper

A Pilot Study of a Behavioral Parent Training in the Republic of Macedonia

Auteurs: Blake D. Hansen, Emma Lucy Orton, Chase Adams, Laura Knecht, Sophie Rindlisbaker, Filip Jurtoski, Vladimir Trajkovski

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2017

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Parenting children with autism in countries with limited professional and financial resources can be overwhelming. Parent training led by non-governmental organizations may help alleviate some of these burdens. The present pilot study was conducted in the Republic of Macedonia, a country located in Southeastern Europe. The purpose of the study was to evaluate a parent training model for disseminating evidence-based practices through didactic and pyramidal training strategies. Results indicated that children improved on a number of different behaviors and results provide some evidence that parenting confidence and distress improved.
Literatuur
go back to reference Ahearn, W. H., Clark, K. M., MacDonald, R. P., & Chung, B. I. (2007). Assessing and treating vocal stereotypy in children with autism. Journal of Applied Behavior Analysis, 40(2), 263–275.CrossRefPubMedPubMedCentral Ahearn, W. H., Clark, K. M., MacDonald, R. P., & Chung, B. I. (2007). Assessing and treating vocal stereotypy in children with autism. Journal of Applied Behavior Analysis, 40(2), 263–275.CrossRefPubMedPubMedCentral
go back to reference Ahrens, E. N., Lerman, D. C., Kodak, T., Worsdell, A. S., & Keegan, C. (2011). Further evaluation of response interruption and redirection as treatment for stereotypy. Journal of Applied Behavior Analysis, 44(1), 95–108.CrossRefPubMedPubMedCentral Ahrens, E. N., Lerman, D. C., Kodak, T., Worsdell, A. S., & Keegan, C. (2011). Further evaluation of response interruption and redirection as treatment for stereotypy. Journal of Applied Behavior Analysis, 44(1), 95–108.CrossRefPubMedPubMedCentral
go back to reference Ajdinski, G. (2004). Ten-year existence and activities of defectology studies 1993–2003. Journal of Special Education and Rehabilitation, 5(1–2), 11–21. Ajdinski, G. (2004). Ten-year existence and activities of defectology studies 1993–2003. Journal of Special Education and Rehabilitation, 5(1–2), 11–21.
go back to reference Ajdinski, Lj., & Florian, L. (1997). Special education in Macedonia. European Journal of Special Needs Education, 12(2), 116–126.CrossRef Ajdinski, Lj., & Florian, L. (1997). Special education in Macedonia. European Journal of Special Needs Education, 12(2), 116–126.CrossRef
go back to reference American Psychiatric Association (2013). Diagnostic and statistical manual of mental health disorders: DSM-5 (5th edn). Washington, DC: American Psychiatric Publishing.CrossRef American Psychiatric Association (2013). Diagnostic and statistical manual of mental health disorders: DSM-5 (5th edn). Washington, DC: American Psychiatric Publishing.CrossRef
go back to reference Baker, D. L., & Drapela, L. A. (2010). Mostly the mother: Concentration of adverse employment effects on mothers of children with autism. The Social Science Journal, 47(3), 578–592.CrossRef Baker, D. L., & Drapela, L. A. (2010). Mostly the mother: Concentration of adverse employment effects on mothers of children with autism. The Social Science Journal, 47(3), 578–592.CrossRef
go back to reference Barton, E. E., & Fettig, A. (2013). Parent-implemented interventions for young children with disabilities: A review of fidelity features. Journal of Early Intervention, 35(2), 194–219.CrossRef Barton, E. E., & Fettig, A. (2013). Parent-implemented interventions for young children with disabilities: A review of fidelity features. Journal of Early Intervention, 35(2), 194–219.CrossRef
go back to reference Bearss, K., Johnson, C., Smith, T., Lecavalier, L., Swiezy, N., Aman, M. … Scahill, L. (2015). Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: A randomized clinical trial. Journal of the American Medical Association, 313(15), 1524–1533.CrossRefPubMed Bearss, K., Johnson, C., Smith, T., Lecavalier, L., Swiezy, N., Aman, M. … Scahill, L. (2015). Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: A randomized clinical trial. Journal of the American Medical Association, 313(15), 1524–1533.CrossRefPubMed
go back to reference Borckardt, J. J., Nash, M. R., Murphy, M. D., Moore, M., Shaw, D., & O’Neil, P. (2008). Clinical practice as natural laboratory for psychotherapy research: A guide to case-based time-series analysis. American Psychologist, 63(2), 77.CrossRefPubMed Borckardt, J. J., Nash, M. R., Murphy, M. D., Moore, M., Shaw, D., & O’Neil, P. (2008). Clinical practice as natural laboratory for psychotherapy research: A guide to case-based time-series analysis. American Psychologist, 63(2), 77.CrossRefPubMed
go back to reference Carbone, V. J., O’Brien, L., Sweeney-Kerwin, E. J., & Albert, K. M. (2013). Teaching eye contact to children with autism: A conceptual analysis and single case study. Education and Treatment of Children, 36(2), 139–159. doi:10.1353/etc.2013.0013.CrossRef Carbone, V. J., O’Brien, L., Sweeney-Kerwin, E. J., & Albert, K. M. (2013). Teaching eye contact to children with autism: A conceptual analysis and single case study. Education and Treatment of Children, 36(2), 139–159. doi:10.​1353/​etc.​2013.​0013.CrossRef
go back to reference Cidav, Z., Marcus, S. C., & Mandell, D. S. (2012). Implications of childhood autism for parental employment and earnings. Pediatrics, 129(4), 617–623.CrossRefPubMedPubMedCentral Cidav, Z., Marcus, S. C., & Mandell, D. S. (2012). Implications of childhood autism for parental employment and earnings. Pediatrics, 129(4), 617–623.CrossRefPubMedPubMedCentral
go back to reference Dingfelder, H. E., & Mandell, D. S. (2011). Bridging the research-to-practice gap in autism intervention: An application of diffusion of innovation theory. Journal of Autism and Developmental Disorders, 41(5), 597–609.CrossRefPubMedPubMedCentral Dingfelder, H. E., & Mandell, D. S. (2011). Bridging the research-to-practice gap in autism intervention: An application of diffusion of innovation theory. Journal of Autism and Developmental Disorders, 41(5), 597–609.CrossRefPubMedPubMedCentral
go back to reference Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–52.CrossRefPubMed Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–52.CrossRefPubMed
go back to reference Dyches, T. T., Wilder, L. K., Sudweeks, R. R., Obiakor, F. E., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disorders, 34(2), 211–222.CrossRefPubMed Dyches, T. T., Wilder, L. K., Sudweeks, R. R., Obiakor, F. E., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disorders, 34(2), 211–222.CrossRefPubMed
go back to reference Emerson, E. (2007). Poverty and people with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13(2), 107–113.CrossRefPubMed Emerson, E. (2007). Poverty and people with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13(2), 107–113.CrossRefPubMed
go back to reference Goodman, R. (2001). Psychometric properties of the strengths and difficulties questionnaire. Journal of the American Academy of Child & Adolescent Psychiatry, 40(11), 1337–1345.CrossRef Goodman, R. (2001). Psychometric properties of the strengths and difficulties questionnaire. Journal of the American Academy of Child & Adolescent Psychiatry, 40(11), 1337–1345.CrossRef
go back to reference Grahame, V., Brett, D., Dixon, L., McConachie, H., Lowry, J., Rodgers, J., Steen, N., & Le Couteur, A. (2015). Managing repetitive behaviours in young children with autism spectrum disorder (ASD): Pilot randomized controlled trial of a new parent group intervention. Journal of Autism and Developmental Disorders, 43, 3168–3182.CrossRef Grahame, V., Brett, D., Dixon, L., McConachie, H., Lowry, J., Rodgers, J., Steen, N., & Le Couteur, A. (2015). Managing repetitive behaviours in young children with autism spectrum disorder (ASD): Pilot randomized controlled trial of a new parent group intervention. Journal of Autism and Developmental Disorders, 43, 3168–3182.CrossRef
go back to reference Gray, D. E. (2009). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual and Developmental Disability, 27, 215–222.CrossRef Gray, D. E. (2009). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual and Developmental Disability, 27, 215–222.CrossRef
go back to reference Graziano, A. M., & Diament, D. M. (1992). Parent behavioral training: An examination of the paradigm. Behavior Modification, 16(1), 3–38.CrossRefPubMed Graziano, A. M., & Diament, D. M. (1992). Parent behavioral training: An examination of the paradigm. Behavior Modification, 16(1), 3–38.CrossRefPubMed
go back to reference Green, G., Brennan, L. C., & Fein, D. (2002). Intensive behavioral treatment for a toddler at high risk for autism. Behavior Modification, 26(1), 69–102.CrossRefPubMed Green, G., Brennan, L. C., & Fein, D. (2002). Intensive behavioral treatment for a toddler at high risk for autism. Behavior Modification, 26(1), 69–102.CrossRefPubMed
go back to reference Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.CrossRefPubMed Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.CrossRefPubMed
go back to reference Iizuka, C., Yamashita, Y., Nagamitsu, S., Yamashita, T., Araki, Y., et al. (2010). Comparison of the strengths and difficulties questionnaire (SDQ) scores between children with high-functioning autism spectrum disorder (HFASD) and attention-deficit/hyperactivity disorder. Brain and Development, 32(8), 609–612.CrossRefPubMed Iizuka, C., Yamashita, Y., Nagamitsu, S., Yamashita, T., Araki, Y., et al. (2010). Comparison of the strengths and difficulties questionnaire (SDQ) scores between children with high-functioning autism spectrum disorder (HFASD) and attention-deficit/hyperactivity disorder. Brain and Development, 32(8), 609–612.CrossRefPubMed
go back to reference Johnson, C. R., Turner, K. S., Foldes, E., Brooks, M. M., Kronk, R., & Wiggs, L. (2013). Behavioral parent training to address sleep disturbances in young children with autism spectrum disorder: A pilot trial. Sleep Medicine, 14(10), 995–1004.CrossRefPubMedPubMedCentral Johnson, C. R., Turner, K. S., Foldes, E., Brooks, M. M., Kronk, R., & Wiggs, L. (2013). Behavioral parent training to address sleep disturbances in young children with autism spectrum disorder: A pilot trial. Sleep Medicine, 14(10), 995–1004.CrossRefPubMedPubMedCentral
go back to reference Knapp, M., Romeo, R., & Beecham, J. (2009). Economic cost of autism in the UK. Autism, 13(3), 317–336.CrossRefPubMed Knapp, M., Romeo, R., & Beecham, J. (2009). Economic cost of autism in the UK. Autism, 13(3), 317–336.CrossRefPubMed
go back to reference Krantz, P. J., MacDuff, M. T., & McClannahan, L. E. (1993). Programming participation in family activities for children with autism: Parents’ use of photographic activity schedules. Journal of Applied Behavior Analysis, 26(1), 137–138.CrossRefPubMedPubMedCentral Krantz, P. J., MacDuff, M. T., & McClannahan, L. E. (1993). Programming participation in family activities for children with autism: Parents’ use of photographic activity schedules. Journal of Applied Behavior Analysis, 26(1), 137–138.CrossRefPubMedPubMedCentral
go back to reference Lotter, V. (1978). Childhood autism in Africa. Journal of Child Psychology and Psychiatry, 19(3), 231–244.CrossRefPubMed Lotter, V. (1978). Childhood autism in Africa. Journal of Child Psychology and Psychiatry, 19(3), 231–244.CrossRefPubMed
go back to reference Loughrey, T. O., Contreras, B. P., Majdalany, L. M., Rudy, N., Sinn, S., Teague, P.,…& Harvey, A. C. (2014). Caregivers as interventionists and trainers: Teaching mands to children with developmental disabilities. The Analysis of Verbal Behavior, 30, 128–140. doi:10.1007/s40616-014-0005-z.CrossRefPubMedPubMedCentral Loughrey, T. O., Contreras, B. P., Majdalany, L. M., Rudy, N., Sinn, S., Teague, P.,…& Harvey, A. C. (2014). Caregivers as interventionists and trainers: Teaching mands to children with developmental disabilities. The Analysis of Verbal Behavior, 30, 128–140. doi:10.​1007/​s40616-014-0005-z.CrossRefPubMedPubMedCentral
go back to reference Mace, F. C., Hock, M. L., Lalli, J. S., West, B. J., Belfiore, P., Pinter, E., & Brown, D. K. (1988). Behavioral momentum in the treatment of noncompliance. Journal of Applied Behavior Analysis, 21(2), 123–141.CrossRefPubMedPubMedCentral Mace, F. C., Hock, M. L., Lalli, J. S., West, B. J., Belfiore, P., Pinter, E., & Brown, D. K. (1988). Behavioral momentum in the treatment of noncompliance. Journal of Applied Behavior Analysis, 21(2), 123–141.CrossRefPubMedPubMedCentral
go back to reference Maughan, D. R., Christiansen, E., Jenson, W. R., Olympia, D., & Clark, E. (2005). Behavioral parent training as a treatment for externalizing behaviors and disruptive behavior disorders: A meta-analysis. School Psychology Review, 34(3), 267–286. Maughan, D. R., Christiansen, E., Jenson, W. R., Olympia, D., & Clark, E. (2005). Behavioral parent training as a treatment for externalizing behaviors and disruptive behavior disorders: A meta-analysis. School Psychology Review, 34(3), 267–286.
go back to reference McConkey, R., Mariga, L., Braadland, N., & Mphole, P. (2000). Parents as trainers about disability in low income countries. International Journal of Disability Development and Education, 47(3), 310–317.CrossRef McConkey, R., Mariga, L., Braadland, N., & Mphole, P. (2000). Parents as trainers about disability in low income countries. International Journal of Disability Development and Education, 47(3), 310–317.CrossRef
go back to reference Mendoza, R. L. (2010). The economics of autism in Egypt. American Journal of Economics and Business Administration, 2(1), 12.CrossRef Mendoza, R. L. (2010). The economics of autism in Egypt. American Journal of Economics and Business Administration, 2(1), 12.CrossRef
go back to reference Pope, D., Katreniak, Z., Guha, J., Puzzolo, E., Higgerson, J., et al. (2015). in press). Collecting standardized urban health indicator data at an individual level for school-aged children living in urban areas: Methods from EURO-URHIS 2. The European Journal of Public Health. doi:10.1093/eurpub/ckv105. Pope, D., Katreniak, Z., Guha, J., Puzzolo, E., Higgerson, J., et al. (2015). in press). Collecting standardized urban health indicator data at an individual level for school-aged children living in urban areas: Methods from EURO-URHIS 2. The European Journal of Public Health. doi:10.​1093/​eurpub/​ckv105.
go back to reference Riley-Tillman, T. C., Chafouleas, S. M., Sassu, K. A., Chanese, J. A., & Glazer, A. D. (2008). Examining the agreement of direct behavior ratings and systematic direct observation data for on-task and disruptive behavior. Journal of Positive Behavior Interventions, 10(2), 136–143.CrossRef Riley-Tillman, T. C., Chafouleas, S. M., Sassu, K. A., Chanese, J. A., & Glazer, A. D. (2008). Examining the agreement of direct behavior ratings and systematic direct observation data for on-task and disruptive behavior. Journal of Positive Behavior Interventions, 10(2), 136–143.CrossRef
go back to reference Rivers, J. W., & Stoneman, Z. (2003). Sibling relationships when a child has autism: Marital stress and support coping. Journal of Autism and Developmental Disorders, 33(4), 383–394.CrossRefPubMed Rivers, J. W., & Stoneman, Z. (2003). Sibling relationships when a child has autism: Marital stress and support coping. Journal of Autism and Developmental Disorders, 33(4), 383–394.CrossRefPubMed
go back to reference Schreibman, L., Kaneko, W. M., & Koegel, R. L. (1991). Positive affect of parents of autistic children: A comparison across two teaching techniques. Behavior Therapy, 22(4), 479–490.CrossRef Schreibman, L., Kaneko, W. M., & Koegel, R. L. (1991). Positive affect of parents of autistic children: A comparison across two teaching techniques. Behavior Therapy, 22(4), 479–490.CrossRef
go back to reference Singer, G. H., & Floyd, F. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal on Mental Retardation, 111(3), 155–169.CrossRefPubMed Singer, G. H., & Floyd, F. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal on Mental Retardation, 111(3), 155–169.CrossRefPubMed
go back to reference Sofronoff, K., & Farbotko, M. (2002). The effectiveness of parent management training to increase self-efficacy in parents of children with Asperger syndrome. Autism, 6(3), 271–286.CrossRefPubMed Sofronoff, K., & Farbotko, M. (2002). The effectiveness of parent management training to increase self-efficacy in parents of children with Asperger syndrome. Autism, 6(3), 271–286.CrossRefPubMed
go back to reference Trajkovski, V. (2008). Study about persons with disabilities in Macedonia. Skopje: United Nations Development Programme/United Nations Population Fund. Trajkovski, V. (2008). Study about persons with disabilities in Macedonia. Skopje: United Nations Development Programme/United Nations Population Fund.
go back to reference Trajkovski, V. (2010, May 13). Health care system for people with intellectual disabilities in Macedonia, Bristol: International Congress of Best Practice in Intellectual Disability Medicine. Trajkovski, V. (2010, May 13). Health care system for people with intellectual disabilities in Macedonia, Bristol: International Congress of Best Practice in Intellectual Disability Medicine.
go back to reference Trajkovski, V. (2015). Health protection system of persons with disabilities in Republic of Macedonia. Novi Sad: Actual Defectological Practice. Trajkovski, V. (2015). Health protection system of persons with disabilities in Republic of Macedonia. Novi Sad: Actual Defectological Practice.
go back to reference Trajkovski, V., Vasilevska, K., Ajdinski, L., & Spiroski, M. (2005). Epidemiological characteristics of autism in Republic of Macedonia. Journal of Special Education and Rehabilitation, 3(4), 25–39. Trajkovski, V., Vasilevska, K., Ajdinski, L., & Spiroski, M. (2005). Epidemiological characteristics of autism in Republic of Macedonia. Journal of Special Education and Rehabilitation, 3(4), 25–39.
go back to reference Van Camp, C. M., Vollmer, T. R., Goh, H. L., Whitehouse, C. M., Reyes, J., Montgomery, J. L., & Borrero, J. C. (2008). Behavioral parent training in child welfare: Evaluation of skills acquisition. Research on Social Work Practice, 18, 377–391.CrossRef Van Camp, C. M., Vollmer, T. R., Goh, H. L., Whitehouse, C. M., Reyes, J., Montgomery, J. L., & Borrero, J. C. (2008). Behavioral parent training in child welfare: Evaluation of skills acquisition. Research on Social Work Practice, 18, 377–391.CrossRef
go back to reference Vismara, L. A., & Rogers, S. J. (2008). The Early Start Denver Model: A case study of innovative practice. Journal of Early Intervention, 31, 91–108.CrossRef Vismara, L. A., & Rogers, S. J. (2008). The Early Start Denver Model: A case study of innovative practice. Journal of Early Intervention, 31, 91–108.CrossRef
go back to reference Wadsworth, J. P., Hansen, B. D., & Wills, S. B. (2015). Increasing compliance in students with intellectual disabilities using functional assessment and self-monitoring. Remedial and Special Education, 36(4), 195–207.CrossRef Wadsworth, J. P., Hansen, B. D., & Wills, S. B. (2015). Increasing compliance in students with intellectual disabilities using functional assessment and self-monitoring. Remedial and Special Education, 36(4), 195–207.CrossRef
go back to reference Weiss, J. A., & Lunsky, Y. (2011). The brief family distress scale: A measure of crisis in caregivers of individuals with autism spectrum disorders. Journal of Child and Family Studies, 20(4), 521–528.CrossRef Weiss, J. A., & Lunsky, Y. (2011). The brief family distress scale: A measure of crisis in caregivers of individuals with autism spectrum disorders. Journal of Child and Family Studies, 20(4), 521–528.CrossRef
Metagegevens
Titel
A Pilot Study of a Behavioral Parent Training in the Republic of Macedonia
Auteurs
Blake D. Hansen
Emma Lucy Orton
Chase Adams
Laura Knecht
Sophie Rindlisbaker
Filip Jurtoski
Vladimir Trajkovski
Publicatiedatum
03-04-2017
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 6/2017
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-017-3112-6

Andere artikelen Uitgave 6/2017

Journal of Autism and Developmental Disorders 6/2017 Naar de uitgave