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01-05-2008 | Original Paper

A Comparative Analysis of Well-Being and Coping among Mothers of Toddlers and Mothers of Adolescents with ASD

Auteurs: Leann E. Smith, Marsha Mailick Seltzer, Helen Tager-Flusberg, Jan S. Greenberg, Alice S. Carter

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2008

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Abstract

The present study examined the impact of autism symptoms and coping strategies on the well-being of mothers of children with autism spectrum disorder (ASD). The sample consisted of 153 mothers of toddlers and 201 mothers of adolescents drawn from two ongoing, longitudinal studies of families of individuals with ASD. For mothers of toddlers, lower levels of emotion-focused coping and higher levels of problem-focused coping were generally associated with better maternal well-being, regardless of the level of child symptomatology. For mothers of adolescents, coping often acted as a buffer when autism symptoms were high. Although there was evidence of maternal distress in both groups, the presence of significant buffering effects reflects adaptation in the face of stress, particularly for mothers of adolescents.
Literatuur
go back to reference Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Osmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile × syndrome. American Journal on Mental Retardation, 109, 237–254.PubMedCrossRef Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Osmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile × syndrome. American Journal on Mental Retardation, 109, 237–254.PubMedCrossRef
go back to reference Allik, H., Larsson, J.-O., & Smedje, H. (2006). Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism. Health and Quality of Life Outcomes, 4, 1–8.PubMedCrossRef Allik, H., Larsson, J.-O., & Smedje, H. (2006). Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism. Health and Quality of Life Outcomes, 4, 1–8.PubMedCrossRef
go back to reference Arnett, J. J. (1999). Adolescent storm and stress, reconsidered. American Psychologist, 54, 317–326.PubMedCrossRef Arnett, J. J. (1999). Adolescent storm and stress, reconsidered. American Psychologist, 54, 317–326.PubMedCrossRef
go back to reference Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavior disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50, 184–198.PubMedCrossRef Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavior disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50, 184–198.PubMedCrossRef
go back to reference Blacher, J., Neece, C. L., & Paczkowski, E. (2005). Families and intellectual disability. Current Opinion in Psychiatry, 18, 507–513.PubMedCrossRef Blacher, J., Neece, C. L., & Paczkowski, E. (2005). Families and intellectual disability. Current Opinion in Psychiatry, 18, 507–513.PubMedCrossRef
go back to reference Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status, and satisfaction with services. Autism, 8, 409–423.PubMedCrossRef Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status, and satisfaction with services. Autism, 8, 409–423.PubMedCrossRef
go back to reference Carter, A. S., Black, D. O., Tewani, S., Connolly, C. E., Kadlec, M. B., & Tager-Flusberg, H. (2007). Sex differences in toddlers with autism spectrum disorders. Journal of Autism and Developmental Disorders, 37, 86–97.PubMedCrossRef Carter, A. S., Black, D. O., Tewani, S., Connolly, C. E., Kadlec, M. B., & Tager-Flusberg, H. (2007). Sex differences in toddlers with autism spectrum disorders. Journal of Autism and Developmental Disorders, 37, 86–97.PubMedCrossRef
go back to reference Carver, C. S., Sheier, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56, 267–283.PubMedCrossRef Carver, C. S., Sheier, M. F., & Weintraub, J. K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56, 267–283.PubMedCrossRef
go back to reference Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9, 416–427.PubMedCrossRef Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9, 416–427.PubMedCrossRef
go back to reference Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behavior problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671.PubMedCrossRef Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behavior problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671.PubMedCrossRef
go back to reference Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation. American Journal on Mental Retardation, 104, 545–563.PubMedCrossRef Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation. American Journal on Mental Retardation, 104, 545–563.PubMedCrossRef
go back to reference Fitzgerald, M., Birkbeck, G., & Matthews, P. (2002). Maternal burden in families with children with autistic spectrum disorder. Irish Journal of Psychology, 23, 2–17. Fitzgerald, M., Birkbeck, G., & Matthews, P. (2002). Maternal burden in families with children with autistic spectrum disorder. Irish Journal of Psychology, 23, 2–17.
go back to reference Folkman, S. (1984). Personal control and stress and coping processes: A theoretical analysis. Journal of Personalilty and Social Psychology, 46, 839–852.CrossRef Folkman, S. (1984). Personal control and stress and coping processes: A theoretical analysis. Journal of Personalilty and Social Psychology, 46, 839–852.CrossRef
go back to reference Gray, D. E. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual and Developmental Disability, 27, 215–222.CrossRef Gray, D. E. (2002). Ten years on: A longitudinal study of families of children with autism. Journal of Intellectual and Developmental Disability, 27, 215–222.CrossRef
go back to reference Hastings, R. P., Allen, R., McDermott, K., & Still, D. (2002). Factors related to positive perceptions in mothers of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 269–275.CrossRef Hastings, R. P., Allen, R., McDermott, K., & Still, D. (2002). Factors related to positive perceptions in mothers of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 269–275.CrossRef
go back to reference Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., degli Espinosa, F., & Remington, B. (2005a). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9, 377–391.PubMedCrossRef Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., degli Espinosa, F., & Remington, B. (2005a). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9, 377–391.PubMedCrossRef
go back to reference Hastings, R. P., Kovshoff, H., Ward, N. J., degli Espinosa, F., Brown, T., & Remington, B. (2005b). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644.PubMedCrossRef Hastings, R. P., Kovshoff, H., Ward, N. J., degli Espinosa, F., Brown, T., & Remington, B. (2005b). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635–644.PubMedCrossRef
go back to reference Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behavior and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50, 874–882.PubMedCrossRef Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behavior and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50, 874–882.PubMedCrossRef
go back to reference Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9, 125–137.PubMedCrossRef Higgins, D. J., Bailey, S. R., & Pearce, J. C. (2005). Factors associated with functioning style and coping strategies of families with a child with an autism spectrum disorder. Autism, 9, 125–137.PubMedCrossRef
go back to reference Kling, K. C., Seltzer, M. M., & Ryff, C. D. (1997). Distinctive late-life challenges: Implications for coping and well-being. Psychology and Aging, 12, 288–295.PubMedCrossRef Kling, K. C., Seltzer, M. M., & Ryff, C. D. (1997). Distinctive late-life challenges: Implications for coping and well-being. Psychology and Aging, 12, 288–295.PubMedCrossRef
go back to reference Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behavior problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.PubMedCrossRef Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behavior problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.PubMedCrossRef
go back to reference Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Leventhal, B. L., DiLavore, P. S., Pickles, A., & Rutter, M. (2000). The autism diagnostic observation schedule-generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disabilities, 30, 205–223.CrossRef Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Leventhal, B. L., DiLavore, P. S., Pickles, A., & Rutter, M. (2000). The autism diagnostic observation schedule-generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disabilities, 30, 205–223.CrossRef
go back to reference Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism diagnostic interview—Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24, 659–685.PubMedCrossRef Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism diagnostic interview—Revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders, 24, 659–685.PubMedCrossRef
go back to reference Lounds, J. J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. (in press). Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation. Lounds, J. J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. (in press). Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation.
go back to reference McNair, D., Lorr, M., & Droppleman, L. F. (1971). Profile of mood states. San Diego, CA: Educational and Industrial Testing Service. McNair, D., Lorr, M., & Droppleman, L. F. (1971). Profile of mood states. San Diego, CA: Educational and Industrial Testing Service.
go back to reference Orr, R. R., Cameron, S. J., Dobson, L. A., & Day, D. M. (1993). Age-related changes in stress experienced by families with a child who has developmental delays. Mental Retardation, 31, 171–176.PubMed Orr, R. R., Cameron, S. J., Dobson, L. A., & Day, D. M. (1993). Age-related changes in stress experienced by families with a child who has developmental delays. Mental Retardation, 31, 171–176.PubMed
go back to reference Pearlin, L. I., & Schooler, C. (1978). The structure of coping. Journal of Health and Social Behavior, 19, 2–21.PubMedCrossRef Pearlin, L. I., & Schooler, C. (1978). The structure of coping. Journal of Health and Social Behavior, 19, 2–21.PubMedCrossRef
go back to reference Radloff, L. S. (1977). The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.CrossRef Radloff, L. S. (1977). The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.CrossRef
go back to reference Rogers, S. J. (1998). Empirically supported comprehensive treatments for young children with autism. Journal of Clinical Child Psychology, 27, 168–179.PubMedCrossRef Rogers, S. J. (1998). Empirically supported comprehensive treatments for young children with autism. Journal of Clinical Child Psychology, 27, 168–179.PubMedCrossRef
go back to reference Rutter, M., Le Couteur, A., & Lord, C. (2003). ADI-R. Autism diagnostic interview-revised WPS edition. Los Angeles: Western Psychological Services. Rutter, M., Le Couteur, A., & Lord, C. (2003). ADI-R. Autism diagnostic interview-revised WPS edition. Los Angeles: Western Psychological Services.
go back to reference Ryff, C. (1989). In the eye of the beholder: Views of psychological well-being among middle-aged and older adults. Psychology and Aging, 4, 195–210.PubMedCrossRef Ryff, C. (1989). In the eye of the beholder: Views of psychological well-being among middle-aged and older adults. Psychology and Aging, 4, 195–210.PubMedCrossRef
go back to reference Seltzer, M. M., Greenberg, J. S., & Krauss, M. W. (1995). A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation. Psychology and Aging, 10, 64–75.PubMedCrossRef Seltzer, M. M., Greenberg, J. S., & Krauss, M. W. (1995). A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation. Psychology and Aging, 10, 64–75.PubMedCrossRef
go back to reference Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G., Swe, A., & Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorders, 33, 565–581.PubMedCrossRef Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G., Swe, A., & Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorders, 33, 565–581.PubMedCrossRef
go back to reference Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10, 234–247.PubMedCrossRef Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10, 234–247.PubMedCrossRef
go back to reference Shattuck, P. T., Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Bolt, D., King, S., et al. (in press). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders. Shattuck, P. T., Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Bolt, D., King, S., et al. (in press). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders.
go back to reference Stone, W. L., Lee, E. V., Ashford, L., Brissie, J., Hepburn, S. L., Coonrod, E. E., et al. (1999). Can autism be diagnosed accurately in children under 3 years? Journal of Child Psychology and Psychiatry, 40, 219–226.PubMedCrossRef Stone, W. L., Lee, E. V., Ashford, L., Brissie, J., Hepburn, S. L., Coonrod, E. E., et al. (1999). Can autism be diagnosed accurately in children under 3 years? Journal of Child Psychology and Psychiatry, 40, 219–226.PubMedCrossRef
go back to reference Townsend, A., Noelker, L., Deimling, G., & Bass, D. (1989). Longitudinal impact of interhousehold caregiving on adult children’s mental health. Psychology and Aging, 4, 393–401.PubMedCrossRef Townsend, A., Noelker, L., Deimling, G., & Bass, D. (1989). Longitudinal impact of interhousehold caregiving on adult children’s mental health. Psychology and Aging, 4, 393–401.PubMedCrossRef
go back to reference Ventola, P. E., Kleinman, J., Pandey, J., Barton, M., Allen, S., Green, J., et al. (2006). Agreement among four diagnostic instruments for autism spectrum disorders in toddlers. Journal of Autism and Developmental Disorders, 36, 839–847.PubMedCrossRef Ventola, P. E., Kleinman, J., Pandey, J., Barton, M., Allen, S., Green, J., et al. (2006). Agreement among four diagnostic instruments for autism spectrum disorders in toddlers. Journal of Autism and Developmental Disorders, 36, 839–847.PubMedCrossRef
go back to reference Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6, 115–130.PubMedCrossRef Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6, 115–130.PubMedCrossRef
Metagegevens
Titel
A Comparative Analysis of Well-Being and Coping among Mothers of Toddlers and Mothers of Adolescents with ASD
Auteurs
Leann E. Smith
Marsha Mailick Seltzer
Helen Tager-Flusberg
Jan S. Greenberg
Alice S. Carter
Publicatiedatum
01-05-2008
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 5/2008
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-007-0461-6