Skip to main content
Bohn Stafleu van Loghum
ZOEKEN
MENU 1 2 3 4
main-content
Top

Tip

Swipe om te navigeren naar een ander artikel

Gepubliceerd in: Journal of Child and Family Studies 7/2019

26-03-2019 | Original Paper

A Call to Society for Supported Decision-Making: Theoretical and Legal Reasoning

Auteurs: Dalun Zhang, Jessica M. Walker, Dianey R. Leal, Leena Jo Landmark, Antonis Katsiyannis

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 7/2019

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

We call attention to the need for supported decision-making (SDM) in place of substituted decision-making (e.g., guardianship). SDM allows individuals with intellectual and/or developmental disabilities to make their own life choices with self-appointed supporters. Whereas there is a growing recognition that SDM is a needed practice, America’s deep-rooted paternalistic culture makes it difficult to fully embrace SDM models. Recent court rulings portray an evolution of decision making towards SDM as an option for individuals with intellectual and/or developmental disabilities. These court rulings along with widely accepted theories and emerging research supporting SDM have an increasingly critical influence on policymakers in further advancing the rights of persons with disabilities.
vorige artikel Self-Compassion and Mindfulness: Modeling Change Processes Associated with the Reduction of Perinatal Depression
volgende artikel Transitions in Adulthood and Women’s Attitudes toward The Gender Division of Labor in South Korea
Literatuur
Andreasian, K., Chin, N., Glen, K. B., Haroules, B., Hermann, K. I., Kuns, M., & Weinstein, N. (2014). Revisiting SCPA 17-A: Guardianship for people with intellectual and developmental disabilities. I CUNY L Review, 18, 287.
Arias, A. (2013). A time to step in: Legal mechanisms for protecting those with declining capacity. American Journal of Law and Medicine, 39, 134–159. CrossRefPubMed
Barnes, C. (2012). Understanding the social model of disability: Past, present, and future. In N. Watson, A. Roulestone & C. Thomas (Eds.), Routledge Handbook of Disability Studies (pp. 12–29). London: Routledge.
Baynton, D. C. (2013). Disability and the justification of inequality in American history. In L. J. Davis (Ed.), The disability studies reader. 4th edn. (pp. 17–33). New York, NY: Routledge.
Bill of Rights of Wards, 2015 S.B. 1882, 84th Cong. (2015).
Black, A. E., & Deci, E. L. (2000). The effects of instructors’ autonomy support and students’ autonomous motivation on learning organic chemistry: A self-determination theory perspective. Science Education, 84, 740–756. CrossRef
Blanck, P., & Martinis, J. (2015). The Right to Make Choices: The National Resource Center for Supported Decision-Making. Inclusion, 3, 24–33. CrossRef
Boundy, M., & Fleischer, B. (2013). Supported decision making instead of guardianship: An international overview. Washington, D.C.: TASC [Training & Advocacy Support Center], National Disability Rights Network.
Brett, J. (2002). The experience of disability from the perspective of parents of children with profound impairment: Is it time for an alternative model of disability? Disability & Society, 17, 825–843. CrossRef
Burchardt, T. (2004). Capabilities and disability: The capabilities framework and the social model of disability. Disability & Society, 19, 735–751. CrossRef
Burke, C. S., Stagl, K. C., Klein, C., Goodwin, G. F., Salas, E., & Halpin, S. M. (2006). What type of leadership behaviors are functional in teams? A meta-analysis. The Leadership Quarterly, 17, 288–307. CrossRef
Brown, R. (1994). Heller v. Doe: The Supreme Court Diminishes the Rights of Individuals with Mental Retardation. Loyola University Chicago Law Journal, 26, 99–130.
Campanella, T. M. (2015). Supported decision-making in practice. Inclusion, 3, 35–39. CrossRef
Castañeda, R., & Peters, M. L. (2000). Ableism. In M. Adams, W. J. Blumenfled, R. Castañeda, H. W. Hackman, M. L. Peters & X. Zúñiga (Eds.), Readings for diversity and social justice (pp. 319–323). New York, NY: Routledge.
Cerasoli, C. P., Nicklin, J. M., & Ford, M. T. (2014). Intrinsic motivation and extrinsic incentives jointly predict performance: A 40-year meta-analysis. Psychological Bulletin, 140, 980. CrossRefPubMed
Chatzisarantis, N., Hagger, M. S., Biddle, S. J., Smith, B., & Wang, J. C. (2003). A meta-analysis of perceived locus of causality in exercise, sport, and physical education contexts. Journal of Sport and Exercise Psychology, 25, 284–306. CrossRef
Christensen, K. M., & Byrne, B. C. (2014). The Build Environment and Community Integration: A Review of States’ Olmsted Plans. Journal of Disability Policy Studies, 25, 186–195. CrossRef
Deci, E. L., & Ryan, R. (1985). Intrinsic motivation and self-determination in human behavior. New York, NY: Plenum Press. CrossRef
Dinerstein, R. (2012). Implementing legal capacity under Article 12 of the UN Convention on the Rights of Persons with Disabilities: The difficult road from guardianship to supported decision-making. Human Rights Briefing, 19, 1–5.
Fischer, R., & Boer, D. (2011). What is more important for national well-being: money or autonomy? A meta-analysis of well-being, burnout, and anxiety across 63 societies. Journal of Personality and Social Psychology, 101, 164. CrossRefPubMed
Flynn, E., & Arstein-Kerslake, A. (2014). The support model of legal capacity: Fact, fiction, or fantasy? Berkeley Journal of International Law, 32, 124–143.
Fulford, M. D., & Enz, C. A. (1995). The impact of empowerment on service employees. Journal of Managerial Issues, 7, 161–175.
Hagger, M. S., & Chatzisarantis, N. L. (2009). Integrating the theory of planned behaviour and self-determination theory in health behaviour: A meta-analysis. British Journal of Health Psychology, 14, 275–302. CrossRefPubMed
In Re Guardianship of Dameris L., 38 Misc. 3d 570, 580 N.Y. Surr. Ct., N.Y. Cnty (2012).
Jameson, J. M., Riesen, T., Polychronis, S., Trader, B., Mizner, S., Martinis, J., & Hoyle, D. (2015). Guardianship and the potential of supported decision making with individuals with disabilities. Research and Practice for Persons with Severe Disabilities, 40, 36–51. CrossRef
Johns, F. (2012). Person-centered planning in guardianship: A little hope for the future. Utah Law Review, 3, 1541–1573.
Kar, S. B., Pascual, C. A., & Chickering, K. L. (1999). Empowerment of women for health promotion: a meta-analysis. Social Science & Medicine, 49, 1431–1460. CrossRef
Meyer, A. P. (2014). “Ableism” in the legal sphere: An analysis of MHL article 81 adult guardianship of persons with intellectual disabilities. Elderly and Special Needs Law Journal, 24, 7–13.
Morris, J. (1997). Care of empowerment? A disability rights perspective. Social Policy & Administration, 31, 54–60. CrossRef
Ng, J. Y., Ntoumanis, N., Thøgersen-Ntoumani, C., Deci, E. L., Ryan, R. M., Duda, J. L., & Williams, G. C. (2012). Self-determination theory applied to health contexts a meta-analysis. Perspectives on Psychological Science, 7, 325–340. CrossRefPubMed
Niemiec, C. P., & Ryan, R. M. (2009). Autonomy, competence, and relatedness in the classroom applying self-determination theory to educational practice. Theory and Research in Education, 7, 133–144. CrossRef
Oliver, M. (1981). A new model of the social work role in relation to disability. In J. Campling (Ed.), The handicapped person: A new perspective for social workers, 19–32, London: RADAR.
Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28, 1024–1026. CrossRef
Parker, S. K., Axtell, C. M., & Turner, N. (2001). Designing a safer workplace: Importance of job autonomy, communication quality, and supportive supervisors. Journal of Occupational Health Psychology, 6, 211–228.
Patall, E. A., Cooper, H., & Robinson, J. C. (2008). The effects of choice on intrinsic motivation and related outcomes: a meta-analysis of research findings. Psychological Bulletin, 134, 270–300. CrossRefPubMed
Payne-Christiansen, E. M., & Sitlington, P. L. (2008). Guardianship: Its role in the transition process for students with developmental disabilities. Education and Training in Developmental Disabilities, 43, 3–19.
Rood, C., Kanter, A., & Causton, J. (2015). Presumption of incompetence: The systemic assignment of guardianship within the transition process. Research and Practice for Persons with Severe Disabilities, 39, 319–328. CrossRef
Ross et al. v. Hatch, No. CWF120000426P‐03 (Va. Cir. Ct., 2013).
Ryan, R. M., & Deci, E. L. (2000a). Intrinsic and extrinsic motivations: Classic definitions and new directions. Contemporary Educational Psychology, 25, 54–67. CrossRefPubMed
Ryan, R. M., & Deci, E. L. (2000b). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist, 55, 68–78. CrossRefPubMed
Salzman, L. (2010). Rethinking guardianship (again): Substituted decision making as a violation of the integration mandate of Title II of the Americans with Disabilities Act. Cardozo Legal Studies Research Paper, 282, 157.
Seibert, S. E., Wang, G., & Courtright, S. H. (2011). Antecedents and consequences of psychological and team empowerment in organizations: A meta-analytic review. Journal of Applied Psychology, 96, 981. CrossRefPubMed
Shogren, K. A., & Whemeyer, M. L. (2015). A framework for research and intervention design in supported decision-making. Inclusion, 3, 17. CrossRef
Spector, P. E. (1986). Perceived control by employees: A meta-analysis of studies concerning autonomy and participation at work. Human Relations, 39, 1005–1016. CrossRef
Spreitzer, G. M. 1992. When organizations dare: The dynamics of individual empowerment in the workplace. Unpublished Doctoral Dissertation. University of Michigan.
Stancliffe, R. J., Abery, B. H., Springborg, H., & Elkin, S. (2000). Substitute decision-making and personal control: Implications for self-determination. Mental Retardation, 38, 407–421. CrossRefPubMed
Task Panel on Legal and Ethical Issues of the President’s Commission on Mental Health. (1978). Arizona Law Review, 20, 49–174.
Thomas, K. W., & Velthouse, B. A. (1990). Cognitive elements of empowerment: An “interpretive” model of intrinsic task motivation. Academy of Management Review, 15, 666–681.
Volunteer-Supported Decision-Making Advocate Pilot Program. (2009). Tex. Gov’t Code Ann. § 531.02446.
Wehmeyer, M. L. (1992). Self-determination and the education of students with mental retardation. Education and Training in Mental Retardation, 27, 302–314.
Wehmeyer, M. L. (2006). Self-determination and individuals with severe disabilities: reexamining meanings and misinterpretations. Research and Practice in Severe Disabilities, 30, 113–120. CrossRef
Wehmeyer, M. L., & Palmer, S. B. (2003). Adult outcomes for students with cognitive disabilities three-years after high school: The impact of self-determination. Education and Training in Developmental Disabilities, 38, 131–144.
Zangaro, G. A., & Soeken, K. L. (2007). A meta-analysis of studies of nurses’ job satisfaction. Research in Nursing & Health, 30, 445–458. CrossRef
Zimmerman, M. A. (2000). Empowerment Theory: Psychological, Organizational, and Community Levels of Analysis. In J. Rappaport & E. Seidman (Eds.), Handbook of Community Psychology (pp. 43–63). Boston, MA: Springer US.
Metagegevens
Titel
A Call to Society for Supported Decision-Making: Theoretical and Legal Reasoning
Auteurs
Dalun Zhang
Jessica M. Walker
Dianey R. Leal
Leena Jo Landmark
Antonis Katsiyannis
Publicatiedatum
26-03-2019
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 7/2019
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-019-01381-0

Andere artikelen Uitgave 7/2019

Journal of Child and Family Studies 7/2019 Naar de uitgave

Original Paper

Modification to a Systematically Braided Parent-support Curriculum: Results from a Feasibility Pilot

Original Paper

Potential Mediating Role of Parenting Competence in the Relationship Between Posttraumatic Stress Disorder and Family Functioning Post-9/11 Veteran Parents

Original Paper

Interparental and Parent–Child Conflict Predicting Adolescent Depressive Symptoms

Original Paper

Mothers and Fathers, Sons and Daughters: Parental Knowledge and Quality of the Parent‒Child Relationship as Predictors of Delinquency in Same- and Cross–Sex Parent‒Child Dyads

Original Paper

Self-Compassion and Mindfulness: Modeling Change Processes Associated with the Reduction of Perinatal Depression

Review Paper

The Mental Health of Military-Connected Children: A Scoping Review

Version: 0.2002.0