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Gepubliceerd in:

26-03-2019 | Original Paper

A Call to Society for Supported Decision-Making: Theoretical and Legal Reasoning

Auteurs: Dalun Zhang, Jessica M. Walker, Dianey R. Leal, Leena Jo Landmark, Antonis Katsiyannis

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 7/2019

Abstract

We call attention to the need for supported decision-making (SDM) in place of substituted decision-making (e.g., guardianship). SDM allows individuals with intellectual and/or developmental disabilities to make their own life choices with self-appointed supporters. Whereas there is a growing recognition that SDM is a needed practice, America’s deep-rooted paternalistic culture makes it difficult to fully embrace SDM models. Recent court rulings portray an evolution of decision making towards SDM as an option for individuals with intellectual and/or developmental disabilities. These court rulings along with widely accepted theories and emerging research supporting SDM have an increasingly critical influence on policymakers in further advancing the rights of persons with disabilities.

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Andreasian, K., Chin, N., Glen, K. B., Haroules, B., Hermann, K. I., Kuns, M., & Weinstein, N. (2014). Revisiting SCPA 17-A: Guardianship for people with intellectual and developmental disabilities. I CUNY L Review, 18, 287.

Annino, P. (2013). The pros and cons of guardianships for parents of impaired adults. Retrieved from http://www.aicpastore.com/Content/media/PRODUCER_CONTENT/Newsletters/Articles_2013/CPA/May/ImpairedAdults.jsp.

Arias, A. (2013). A time to step in: Legal mechanisms for protecting those with declining capacity. American Journal of Law and Medicine, 39, 134–159.CrossRefPubMed

Barnes, C. (2012). Understanding the social model of disability: Past, present, and future. In N. Watson, A. Roulestone & C. Thomas (Eds.), Routledge Handbook of Disability Studies (pp. 12–29). London: Routledge.

Baynton, D. C. (2013). Disability and the justification of inequality in American history. In L. J. Davis (Ed.), The disability studies reader. 4th edn. (pp. 17–33). New York, NY: Routledge.

Bill of Rights of Wards, 2015 S.B. 1882, 84th Cong. (2015).

Black, A. E., & Deci, E. L. (2000). The effects of instructors’ autonomy support and students’ autonomous motivation on learning organic chemistry: A self-determination theory perspective. Science Education, 84, 740–756.CrossRef

Blanck, P., & Martinis, J. (2015). The Right to Make Choices: The National Resource Center for Supported Decision-Making. Inclusion, 3, 24–33.CrossRef

Boundy, M., & Fleischer, B. (2013). Supported decision making instead of guardianship: An international overview. Washington, D.C.: TASC [Training & Advocacy Support Center], National Disability Rights Network.

Brett, J. (2002). The experience of disability from the perspective of parents of children with profound impairment: Is it time for an alternative model of disability? Disability & Society, 17, 825–843.CrossRef

Burchardt, T. (2004). Capabilities and disability: The capabilities framework and the social model of disability. Disability & Society, 19, 735–751.CrossRef

Burke, C. S., Stagl, K. C., Klein, C., Goodwin, G. F., Salas, E., & Halpin, S. M. (2006). What type of leadership behaviors are functional in teams? A meta-analysis. The Leadership Quarterly, 17, 288–307.CrossRef

Brown, R. (1994). Heller v. Doe: The Supreme Court Diminishes the Rights of Individuals with Mental Retardation. Loyola University Chicago Law Journal, 26, 99–130.

Campanella, T. M. (2015). Supported decision-making in practice. Inclusion, 3, 35–39.CrossRef

Castañeda, R., & Peters, M. L. (2000). Ableism. In M. Adams, W. J. Blumenfled, R. Castañeda, H. W. Hackman, M. L. Peters & X. Zúñiga (Eds.), Readings for diversity and social justice (pp. 319–323). New York, NY: Routledge.

Cerasoli, C. P., Nicklin, J. M., & Ford, M. T. (2014). Intrinsic motivation and extrinsic incentives jointly predict performance: A 40-year meta-analysis. Psychological Bulletin, 140, 980.CrossRefPubMed

Chatzisarantis, N., Hagger, M. S., Biddle, S. J., Smith, B., & Wang, J. C. (2003). A meta-analysis of perceived locus of causality in exercise, sport, and physical education contexts. Journal of Sport and Exercise Psychology, 25, 284–306.CrossRef

Christensen, K. M., & Byrne, B. C. (2014). The Build Environment and Community Integration: A Review of States’ Olmsted Plans. Journal of Disability Policy Studies, 25, 186–195.CrossRef

Deci, E. L., & Ryan, R. (1985). Intrinsic motivation and self-determination in human behavior. New York, NY: Plenum Press.CrossRef

Dinerstein, R. (2012). Implementing legal capacity under Article 12 of the UN Convention on the Rights of Persons with Disabilities: The difficult road from guardianship to supported decision-making. Human Rights Briefing, 19, 1–5.

Disability Rights Texas. (2016). Supported decision-making agreements. https://www.disabilityrightstx.org/files/What_is_SDM_-_SDM1.pdf.

Enax v. Noack. 12 S.W.3d 609 (2000).

Fischer, R., & Boer, D. (2011). What is more important for national well-being: money or autonomy? A meta-analysis of well-being, burnout, and anxiety across 63 societies. Journal of Personality and Social Psychology, 101, 164.CrossRefPubMed

Flynn, E., & Arstein-Kerslake, A. (2014). The support model of legal capacity: Fact, fiction, or fantasy? Berkeley Journal of International Law, 32, 124–143.

Fulford, M. D., & Enz, C. A. (1995). The impact of empowerment on service employees. Journal of Managerial Issues, 7, 161–175.

GRSDM. (n.d.). Guardianship Reform and Supported Decision Making (GRSDM) Workgroup is a collaborative effort to address concerns about the guardianship system in Texas. Retrieved from https://grsdm.wordpress.com.

Hagger, M. S., & Chatzisarantis, N. L. (2009). Integrating the theory of planned behaviour and self-determination theory in health behaviour: A meta-analysis. British Journal of Health Psychology, 14, 275–302.CrossRefPubMed

Hedin v. Gonzalez, 528 N.W. 2d 567 (1995).

Heller v. Doe, 509 U.S. 312 (1993).

In Re Guardianship of Dameris L., 38 Misc. 3d 570, 580 N.Y. Surr. Ct., N.Y. Cnty (2012).

In Re Peery, 556 Pa. 125 (1999).

Jameson, J. M., Riesen, T., Polychronis, S., Trader, B., Mizner, S., Martinis, J., & Hoyle, D. (2015). Guardianship and the potential of supported decision making with individuals with disabilities. Research and Practice for Persons with Severe Disabilities, 40, 36–51.CrossRef

Johns, F. (2012). Person-centered planning in guardianship: A little hope for the future. Utah Law Review, 3, 1541–1573.

Kar, S. B., Pascual, C. A., & Chickering, K. L. (1999). Empowerment of women for health promotion: a meta-analysis. Social Science & Medicine, 49, 1431–1460.CrossRef

Mental Disability Advocacy Center. (2006). Supported Decision-Making: An Alternative to Guardianship. http://mdac.info/sites/mdac.info/files/English_Supported_Decision-making_An_Alternative_to_Guardianship.pdf

Meyer, A. P. (2014). “Ableism” in the legal sphere: An analysis of MHL article 81 adult guardianship of persons with intellectual disabilities. Elderly and Special Needs Law Journal, 24, 7–13.

National Association of Social Workers Texas. (2015). Advancing social justice with guardianship reforms. Texas Council for Developmental Disabilities. https://c.ymcdn.com/sites/naswtx.site-.

Morris, J. (1997). Care of empowerment? A disability rights perspective. Social Policy & Administration, 31, 54–60.CrossRef

Ng, J. Y., Ntoumanis, N., Thøgersen-Ntoumani, C., Deci, E. L., Ryan, R. M., Duda, J. L., & Williams, G. C. (2012). Self-determination theory applied to health contexts a meta-analysis. Perspectives on Psychological Science, 7, 325–340.CrossRefPubMed

Niemiec, C. P., & Ryan, R. M. (2009). Autonomy, competence, and relatedness in the classroom applying self-determination theory to educational practice. Theory and Research in Education, 7, 133–144.CrossRef

Oliver, M. (1981). A new model of the social work role in relation to disability. In J. Campling (Ed.), The handicapped person: A new perspective for social workers, 19–32, London: RADAR.

Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28, 1024–1026.CrossRef

Olmstead v. LC, 527 U.S. 581 (1999).

Parker, S. K., Axtell, C. M., & Turner, N. (2001). Designing a safer workplace: Importance of job autonomy, communication quality, and supportive supervisors. Journal of Occupational Health Psychology, 6, 211–228.

Patall, E. A., Cooper, H., & Robinson, J. C. (2008). The effects of choice on intrinsic motivation and related outcomes: a meta-analysis of research findings. Psychological Bulletin, 134, 270–300.CrossRefPubMed

Payne-Christiansen, E. M., & Sitlington, P. L. (2008). Guardianship: Its role in the transition process for students with developmental disabilities. Education and Training in Developmental Disabilities, 43, 3–19.

Rood, C., Kanter, A., & Causton, J. (2015). Presumption of incompetence: The systemic assignment of guardianship within the transition process. Research and Practice for Persons with Severe Disabilities, 39, 319–328.CrossRef

Ross et al. v. Hatch, No. CWF120000426P‐03 (Va. Cir. Ct., 2013).

Ryan, R. M., & Deci, E. L. (2000a). Intrinsic and extrinsic motivations: Classic definitions and new directions. Contemporary Educational Psychology, 25, 54–67.CrossRefPubMed

Ryan, R. M., & Deci, E. L. (2000b). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist, 55, 68–78.CrossRefPubMed

Salzman, L. (2010). Rethinking guardianship (again): Substituted decision making as a violation of the integration mandate of Title II of the Americans with Disabilities Act. Cardozo Legal Studies Research Paper, 282, 157.

Seibert, S. E., Wang, G., & Courtright, S. H. (2011). Antecedents and consequences of psychological and team empowerment in organizations: A meta-analytic review. Journal of Applied Psychology, 96, 981.CrossRefPubMed

Shogren, K. A., & Whemeyer, M. L. (2015). A framework for research and intervention design in supported decision-making. Inclusion, 3, 17.CrossRef

Spector, P. E. (1986). Perceived control by employees: A meta-analysis of studies concerning autonomy and participation at work. Human Relations, 39, 1005–1016.CrossRef

Spreitzer, G. M. 1992. When organizations dare: The dynamics of individual empowerment in the workplace. Unpublished Doctoral Dissertation. University of Michigan.

Stancliffe, R. J., Abery, B. H., Springborg, H., & Elkin, S. (2000). Substitute decision-making and personal control: Implications for self-determination. Mental Retardation, 38, 407–421.CrossRefPubMed

Task Panel on Legal and Ethical Issues of the President’s Commission on Mental Health. (1978). Arizona Law Review, 20, 49–174.

Texas Health and Human Services Commission and Texas Department of Aging and Disability Services. (2010). Volunteer-supported decision-making advocate pilot program. https://hhs.texas.gov/sites/hhs/files//volunteer-advocate-pilot-0111.pdf.

Texas Judicial Council. (2014). Elders committee report. Texas Courts. http://www.txcourts.gov/media/410657/Elder-Committee-Update-for-TJC-August-2014.pdf.

The Arc of Texas. (2015). Alternatives to guardianship: Supported decision-making agreements. https://www.thearcoftexas.org/wp-content/uploads/2016/06/Supported_Decision_Making_For_Families_UPDATED_Jan_2016.pdf.

The Arc of Indiana. (2016). Supported decision making in Indiana – Guardianship, civil rights and the case of less restrictive environment. http://www.arcind.org/wp-content/uploads/2016/08/Supported-Decision-in-Making-in-Indiana_Final-Report_6.23.16.pdf.

Thomas, K. W., & Velthouse, B. A. (1990). Cognitive elements of empowerment: An “interpretive” model of intrinsic task motivation. Academy of Management Review, 15, 666–681.

United Nations. (2008). Convention on the Rights of Persons with Disabilities and Optional Protocol. Retrieved from http://www.un.org/disabilities/documents/convention/convoptprot-e.pdf.

Volunteer-Supported Decision-Making Advocate Pilot Program. (2009). Tex. Gov’t Code Ann. § 531.02446.

Wehmeyer, M. L. (1992). Self-determination and the education of students with mental retardation. Education and Training in Mental Retardation, 27, 302–314.

Wehmeyer, M. L. (2006). Self-determination and individuals with severe disabilities: reexamining meanings and misinterpretations. Research and Practice in Severe Disabilities, 30, 113–120.CrossRef

Wehmeyer, M. L., & Palmer, S. B. (2003). Adult outcomes for students with cognitive disabilities three-years after high school: The impact of self-determination. Education and Training in Developmental Disabilities, 38, 131–144.

Wolbring, G. (2008). The politics of ableism. Development, 51, 252–258. https://doi.org/10.1057/dev.2008.17.CrossRef

Zangaro, G. A., & Soeken, K. L. (2007). A meta-analysis of studies of nurses’ job satisfaction. Research in Nursing & Health, 30, 445–458.CrossRef

Zimmerman, M. A. (2000). Empowerment Theory: Psychological, Organizational, and Community Levels of Analysis. In J. Rappaport & E. Seidman (Eds.), Handbook of Community Psychology (pp. 43–63). Boston, MA: Springer US.

Titel: A Call to Society for Supported Decision-Making: Theoretical and Legal Reasoning
Auteurs: Dalun Zhang
Jessica M. Walker
Dianey R. Leal
Leena Jo Landmark
Antonis Katsiyannis
Publicatiedatum: 26-03-2019
Uitgeverij: Springer US
Gepubliceerd in: Journal of Child and Family Studies / Uitgave 7/2019
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI: https://doi.org/10.1007/s10826-019-01381-0

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